2025 Down Syndrome Medical Interest Group-USA (DSMIG-USA®) Annual Symposium
Jointly Provided by
- The Down Syndrome Medical Interest Group-USA (DSMIG-USA®)
- University of Wisconsin–Madison Interprofessional Continuing Education Partnership (ICEP)
Format
The symposium will be held in-person only.
Location
Hilton Anatole
2201 Stemmons Freeway
Dallas, Texas, USA 75207
Phone: 1-888-531-2594
Hotel Rooms
DSMIG-USA has a special block reserved at the Hilton Anatole in Dallas.
If you plan to register and attend DSMIG or NDSC, we encourage you to sign up today; DSMIG members have their own link for rooms: https://book.passkey.com/e/50884214
For any questions, please contact Emilie Perkins at [email protected].
Description and Intended Audience
The Down Syndrome Medical Interest Group-USA (DSMIG-USA®) Annual Symposium provides an interdisciplinary forum for sharing of knowledge and experiences related to the clinical care of children and adults with Down syndrome, clinical research related to Down syndrome, and the development of Down syndrome clinics. The intended audience is DSMIG-USA members and other health professionals working and caring for people with Down syndrome including physicians, research scientists, nurses, nurse practitioners, Down syndrome clinic coordinators, psychologists, dietitians, occupational therapists, physical therapists, speech-language pathologists, social workers, and genetic counselors. Residents and trainees are also welcome to attend.
Learning Objectives
As a result of participation in this educational activity, members of the healthcare team will:
- Identify best practice management strategies for individuals who have Down syndrome and their caregivers
- Recognize and discuss trends in care for people with Down syndrome with interdisciplinary colleagues
- Formulate best practice care plans with interdisciplinary colleagues to incorporate into their practice
Elements of Competence
This continuing education (CE) activity has been designed to change learner competence and focuses on the following competencies:
American Board of Medical Specialties
- Medical knowledge
- Patient care and procedural skills
- Practice-based learning and improvement
- Interpersonal and communication skills
Interprofessional
- Roles/responsibilities
- Communication
- Teams and teamwork
Symposium Fees
Group Discount:
$25 off per registration when two or more register from the same organization! Request Group Discount. This coupon code is only eligible with member and non-member rates (it cannot be used with the student/trainee rate).
Early Bird Fees (on or before May 31, 2025): Use Coupon Code 2025DEB
- Members of DSMIG-USA® in good standing: $325
- Non-members: $425
After May 31, 2025:
- Members of DSMIG-USA® in good standing: $350
- Non-members: $450
On-Site Registration Fee:
$450 (for everyone)
Student/Trainee:
- $199
Welcome Reception:
$40
Saturday Workgroups:
$30 each
Gratis Registration + Welcome Reception For:
- Scholarship Recipients
- Rising Star Scholarships
- Non-Member Speakers
Contact Emilie Perkins ([email protected]) regarding gratis registration.
Cancellation and Refund Policy
Requests for cancellation must be submitted in writing to [email protected]. Cancellation requests received at least 96 hours prior to the symposium will allow a full refund except for the nonrefundable processing fee of $50. No refunds will be made for cancellations received less than 96 hours prior to the activity start date.
For Further Information
For symposium information email Emilie Perkins at [email protected]. For registration assistance, email [email protected].
Friday, July 25, 2025
ALL TIMES ARE CENTRAL TIME
| AM | |
| 8:00-8:10 | Welcome and Announcements, Nicole Baumer, MD, MEd |
| 8:15-9:15 | Evaluation, Treatment, and Support for Patients With Down Syndrome and Alzheimer's Disease, Caroline Bregman, LICSW; Amanda Laezza, RD, LDN; Dominica Nichols, RD, LDN, PhD; Nicolas Oreskovic, MD, MPH; Stephanie Santoro, MD; Brian Skotko, MD, MPP |
| 9:20-10:20 | Women's Health and Down Syndrome: A Case-Based Discussion of Similarities and Differences in Care, Hannah Graham, MD; Charlotte Woodward, BA |
| 10:20-10:30 | Break |
| 10:30-12:00 | Neurodevelopmental Approach for a Successful Clinic Visit, Jennifer Harris, MSE; Allison Meyer, PhD; Lina Patel, PsyD |
| PM | |
| 12:00-1:15 | Lunch and Poster Viewing |
| 1:20-1:30 | NDSC Update |
| 1:35-2:20 | The Interferonopathy of Down Syndrome, Kelly Sullivan, PhD |
| 2:25-3:25 | Keep Moving: Utilizing a Movement System Approach to Help Those With Down Syndrome Stay Active and Healthy, Helen Milligan, PT, DPT, PCS; Mary Pipan, MD |
| 3:25-3:35 | Break |
| 3:35-4:05 | The NIH INCLUDE Project and the Collaboration for Down Syndrome Progress: Transforming Research for Down Syndrome, Jessica Ezzell Hunter, PhD; Bryanna Schwartz, MD, MPH |
| 4:10-4:40 | Lightning Round:
|
| 4:45-5:45 | Practice Changing Articles - Update in the Medical Literature, Peter Bulova, MD; Kishore Vellody, MD |
| 5:50-6:00 | Closing Announcements, Maria Stanley, MD, FAAP |
Additional Activities
Thursday, July 24, 2025
The Thursday activities are not accredited for continuing education credit.
9:00-11:00 AM: Board Meeting
11:00 AM-12:00 PM: Medical Curriculum Workgroup
3:00-4:00 PM Clinic Support Committee; Leader: Mary Stephens, MD, MPH, FAAFP, FAADM
This meeting, previously for Clinic Coordinators only, is now for any Down syndrome clinic staff member (new or seasoned) interested in receiving guidance and/or support for clinic development, management, or operations. During this meeting, attendees will learn about updates on the clinic support section of the DSMIG website, and then share needs and challenges, program ideas, and success stories.
4:00-5:00 PM Project ECHO; Brian Chicoine, MD; Noemi Spinazzi, MD
A 2021 study estimated that only 5% of adults with Down syndrome in the United States have access to a specialty clinic for adults with Down syndrome. While a comparable study of pediatric Down syndrome specialty clinics has not been conducted, the experiences of many DSMIG-USA members suggest that there is also inadequate access to pediatric Down syndrome clinics. In an effort to improve the medical care of individuals with Down syndrome who do not have access to a clinic and to support their healthcare providers, DSMIG-USA developed Down Syndrome Project ECHO in 2023. This presentation will provide a mock session of a Project ECHO meeting and demonstrate how an expert panel and other participants discuss and respond to a presentation by a healthcare provider seeking assistance with medical care for a person with Down syndrome.
5:00-6:00 PM: Top Posters
6:00-7:00 PM: Member Meeting
Join your peers as we gather to celebrate the important programs that impacted DSMIG-USA since last year's meeting. Reports will be shared from committees, workgroups, and officers.
7:15-9:00 PM Welcome Reception
Don't miss the chance to connect and engage with DSMIG members! Enjoy an evening of delicious hors d'oeuvres and refreshing drinks as you reconnect with fellow attendees in a relaxed and informal atmosphere.
Saturday, July 26, 2025
The Saturday workgroups are offering continuing education credit (MOC credit will not be offered).
7:30-9:30 AM Adolescent and Adult Health Workgroup; Leaders: George Capone, MD; Mary Stephens, MD, MPH, FAAFP, FAADM
This workgroup will provide an update on the Adult Healthcare Projects currently underway (medical literature reviews, MH/Regression, dementia screening, weight-lifestyle management, and CME activities). Group discussion, Q&A are planned.
9:45-11:45 AM DS-ASD Workgroup; Leaders: Lina Patel, PsyD; Noemi Spinazzi, MD
This workgroup will include discussions on what has been learned about DS-ASD in the past year, how to apply that learning to improving the quality of care for individuals with co-occurring Down syndrome and autism spectrum disorder, and what needs to be learned in the next year to advance our understanding of how best to serve the needs of these individuals and their families. A summary and updates regarding ongoing projects will be given in addition to applicable information for use within a clinical setting.
Hotel Rooms
The Hilton Anatole is currently full. NDSC has two overflow hotels that will have shuttles running back and forth on Thursday, Friday, Saturday, and Sunday.
- To book at the Courtyard Dallas Medical/Market Center: Click Here
- To book at the Embassy Suites: Click Here
For any questions, please contact Emilie at [email protected].
Symposium Presenters
Caroline Bregman, LICSW, Social Worker, Down Syndrome Program, Massachusetts General Hospital
Peter Bulova, MD, Professor of Medicine, Division of General Internal Medicine, University of Pittsburgh Medical Center
George Capone, MD, Director, Kennedy Krieger Institute's Down Syndrome Clinic and Research Center
Brian Chicoine, MD, Medical Director, Advocate Medical Group Adult Down Syndrome Center; Faculty, Lutheran General Hospital Family Medicine Residency
Jessica Ezzell Hunter, PhD, Director, Genomics, Ethics, and Translational Research Program, RTI International
Hannah Graham, MD, Family Medicine Physician, Advocate Medical Group Adult Down Syndrome Center, Oak Brook, Illinois
Jennifer Harris, MSE, Education Specialist, Anna and John J. Sie Center for Down Syndrome at Children's Hospital Colorado
Jordan Jones, DO, MS, Associate Professor of Pediatrics, Division of Rheumatology, Children's Mercy Hospital
Amanda Laezza, RD, LDN, Dietician, Down Syndrome Program, Massachusetts General Hospital
Andrew McCormick, MD, Director, Healthy Transitions Program, Down Syndrome Center of Western Pennsylvania; Associate Professor of Pediatrics, University of Pittsburgh School of Medicine
Allison Meyer, PhD, Assistant Professor, Department of Pediatrics, University of Colorado School of Medicine; Director of Psychology for the Sie Center for Down Syndrome at Children's Hospital Colorado
Helen Milligan, PT, DPT, PCS, ABPTS Certified Pediatric Clinical Specialist; Assistant Professor, Jefferson College of Rehabilitation Sciences
Dominica Nichols, RD, LDN, PhD, Clinical Nutritionist, Massachusetts General Down Syndrome Program
Nicolas Oreskovic, MD, MPH, Medical Director of Integrated Care Management Program, Massachusetts General Hospital
Lina Patel, PsyD, Program Director for the Down Syndrome Behavioral Health Collaborative at Children's Hospital Colorado; Associate Professor, Department of Psychiatry, University of Colorado School of Medicine
Mary Pipan, MD, Developmental-Behavioral Pediatrician; Director of Trisomy 21 Program, Children's Hospital of Philadelphia
Stephanie Santoro, MD, Clinical Geneticist; Director of Quality Improvement Research, Down Syndrome Program, Massachusetts General Hospital
Bryanna Schwartz, MD, MPH, Pediatric Cardiologist, Children's National Hospital, Washington, DC
Brian Skotko, MD, MPP, Professor of Pediatrics, Harvard Medical School, Emma Campbell Endowed Chair on Down Syndrome, Massachusetts General Hospital
Noemi Spinazzi, MD, Medical Director, Down Syndrome Clinic at UCSF Benioff Children's Hospital Oakland; Associate Clinical Professor, UCSF School of Medicine
Maria Stanley, MD, FAAP, Annual Symposium Committee Co-Chair; Clinical Professor of Pediatrics, University of Wisconsin School of Medicine and Public Health; Medical Director, Waisman Center; Director, Down Syndrome Clinic
Mary Stephens, MD, MPH, FAAFP, FAADM, Medical Director, Jefferson Continuing Care Program (JCCP), Professor, Family and Community Medicine
Kelly Sullivan, PhD, Associate Professor of Pediatrics, Section of Developmental Biology; Boettcher Investigator; Director, Linda Crnic Institute for Down Syndrome Experimental Models Program; Co-Director, Human Medical Genetics and Genomics Graduate Program, University of Colorado Anschutz Medical Campus
Kishore Vellody, MD, Professor of Pediatrics, University of Pittsburgh School of Medicine, Children's Hospital of Pittsburgh, The Paul C. Gaffney Division of Pediatric Hospital Medicine; Adam Piatrandrea Endowed Medical Director, Down Syndrome Center of Western PA
Charlotte Woodward, BA, Education Program Associate for the National Down Syndrome Society (NDSS)
Symposium Planning Committee
Sari Bar, DO, Associate Professor of Pediatrics, UT Southwestern; Medical Director, Developmental-Behavioral Pediatrics Clinic at Children’s Medical Center Dallas
Nicole Baumer, MD, MEd, Director, Sie Center for Down Syndrome; Associate Professor of Pediatrics, University of Colorado-Anschutz Medical Campus
Gabriela Eguiarte Diaz, MD, Pediatrician, Angeles Pedregal Hospital, Mexico
Katie Frank, PhD, OTR/L, Annual Symposium Committee Co-Chair; Occupational Therapist III, Advocate Medical Group Adult Down Syndrome Center
Amy Lyle, MSSW, Clinic Coordinator, Waisman Down Syndrome Clinic, University of Wisconsin-Madison
Andrew McCormick, MD, Director, Healthy Transitions Program, Down Syndrome Center of Western Pennsylvania; Associate Professor of Pediatrics, University of Pittsburgh School of Medicine
Meghan O'Neill, MD, FAAP, National Institutes of Health (NIH); Attending Physician, Developmental and Behavioral Pediatrics; Attending Physician, Neurology, Lurie Children’s Hospital; Assistant Professor of Pediatrics (Developmental Behavioral Pediatrics, Child Neurology), Northwestern University Feinberg School of Medicine
Lina Patel, PsyD, Program Director for the Down Syndrome Behavioral Health Collaborative at Children's Hospital Colorado; Associate Professor, Department of Psychiatry, University of Colorado School of Medicine
Emilie Perkins, Director of Client and Conference Services, Raybourn Group International
Moya Peterson, PhD, APRN, FNP-BC, Adults with Down Syndrome Specialty Clinic, Department of Family Medicine and Community Health, University of Kansas Medical Center
Dannah Raz, MD, Interim Division Chief, Developmental Pediatrics, Barrow Neurological Institute of Phoenix Children's
Noemi Spinazzi, MD, Medical Director, Down Syndrome Clinic at UCSF Benioff Children's Hospital Oakland; Associate Clinical Professor, UCSF School of Medicine
Maria Stanley, MD, FAAP, Annual Symposium Committee Co-Chair; Clinical Professor of Pediatrics, University of Wisconsin School of Medicine and Public Health; Medical Director, Waisman Center; Director, Down Syndrome Clinic
Policy on Faculty and Sponsor Disclosure
It is the policy of the University of Wisconsin–Madison Interprofessional Continuing Education Partnership (ICEP) to identify, mitigate and disclose all relevant financial relationships with ineligible companies* held by the speakers/presenters, authors, planners, and other persons who may influence the content of this accredited continuing education (CE). In addition, speakers, presenters and authors must disclose any planned discussion of unlabeled/unapproved uses of drugs or devices during their presentation.
*Ineligible companies are those whose primary business is producing, marketing, selling, re-selling, or distributing healthcare products used by, or on, patients. The ACCME does not consider providers of clinical services directly to patients to be ineligible companies.
| NAME | ROLE(S) | FINANCIAL RELATIONSHIPS DISCLOSURE | DISCUSSION OF UNLABELED/UNAPPROVED USES OF DRUGS/DEVICES IN PRESENTATION? |
| Sari Bar, DO | Committee Member | No relevant relationships with ineligible companies to disclose | No |
| Nicole Baumer, MD, MEd | Committee Member | No relevant relationships with ineligible companies to disclose | No |
| Caroline Bregman, LICSW | Speaker | No relevant relationships with ineligible companies to disclose | No |
| Peter Bulova, MD | Speaker | No relevant relationships with ineligible companies to disclose | No |
| George Capone, MD | Speaker | No relevant relationships with ineligible companies to disclose | No |
| Brian Chicoine, MD | Speaker | No relevant relationships with ineligible companies to disclose | No |
| Gabriela Eguiarte Diaz, MD | Committee Member, Content Reviewer | No relevant relationships with ineligible companies to disclose | No |
| Jessica Ezzell Hunter, PhD | Speaker | No relevant relationships with ineligible companies to disclose | No |
| Katie Frank, PhD, OTR/L | Co-Medical Director, Committee Member | No relevant relationships with ineligible companies to disclose | No |
| Hannah Graham, MD | Speaker | No relevant relationships with ineligible companies to disclose | No |
| Jennifer Harris, MSE | Speaker | No relevant relationships with ineligible companies to disclose | No |
| Jordan Jones, DO, MS | Speaker | Pfizer Inc. (Contractor) | No |
| Amanda Laezza, RD, LDN | Speaker | No relevant relationships with ineligible companies to disclose | No |
| Amy Lyle, MSSW | Committee Member | No relevant relationships with ineligible companies to disclose | No |
| Andrew McCormick, MD | Committee Member, Speaker, Content Reviewer | No relevant relationships with ineligible companies to disclose | No |
| Cathy Means | Planner | No relevant relationships with ineligible companies to disclose | N/A |
| Allison Meyer, PhD | Speaker | No relevant relationships with ineligible companies to disclose | No |
| Helen Milligan, PT, DPT, PCS | Speaker | No relevant relationships with ineligible companies to disclose | No |
| Dominica Nichols, RD, LDN, PhD | Speaker | No relevant relationships with ineligible companies to disclose | No |
| Meghan O'Neill, MD, FAAP | Committee Member | No relevant relationships with ineligible companies to disclose | No |
| Nicolas Oreskovic, MD, MPH | Speaker | No relevant relationships with ineligible companies to disclose | No |
| Lina Patel, PsyD | Committee Member, Speaker | No relevant relationships with ineligible companies to disclose | No |
| Emilie Perkins | Committee Member | No relevant relationships with ineligible companies to disclose | No |
| Moya Peterson, PhD, APRN, FNP-BC | Committee Member | No relevant relationships with ineligible companies to disclose | No |
| Mary Pipan, MD | Speaker | No relevant relationships with ineligible companies to disclose | No |
| Dannah Raz, MD | Committee Member | Illumina Genetics; Shionogi Inc. (Both Contractor) | No |
| Stephanie Santoro, MD | Speaker | No relevant relationships with ineligible companies to disclose | No |
| Bryanna Schwartz, MD, MPH | Speaker | No relevant relationships with ineligible companies to disclose | No |
| Brian Skotko, MD, MPP | Speaker | AC Immune (Grant); Acta Pharmaceutical; Guidepoint Global; Mano Institute (All Contractor) | No |
| Noemi Spinazzi, MD | Committee Member, Speaker | Ionis Pharmaceuticals (Contractor) | No |
| Maria Stanley, MD, FAAP | Co-Medical Director, Committee Member, Speaker | Inspire Medical Systems, Inc. (Contractor) | No |
| Mary Stephens, MD, MPH, FAAFP, FAADM | Speaker | No relevant relationships with ineligible companies to disclose | Yes |
| Kelly Sullivan, PhD | Speaker | No relevant relationships with ineligible companies to disclose | No |
| Kishore Vellody, MD | Speaker | No relevant relationships with ineligible companies to disclose | No |
| Charlotte Woodward, BA | Speaker | No relevant relationships with ineligible companies to disclose | No |
Accreditation Statement
![]() | In support of improving patient care, this activity has been planned and implemented by the University of Wisconsin–Madison Interprofessional Continuing Education Partnership (ICEP) and the Down Syndrome Medical Interest Group-USA. The University of Wisconsin–Madison ICEP is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC) to provide continuing education for the healthcare team. |
Credit Designation Statements | |
American Medical Association | The University of Wisconsin–Madison ICEP designates this live activity for a maximum of 11.25 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity. |
![]() | American Board of Pediatrics (Maintenance of Certification-MOC)Successful completion of this CME activity, which includes participation in the evaluation component, enables the learner to earn up to 7.25 MOC points in the American Board of Pediatrics' (ABP) Maintenance of Certification (MOC) program. It is the CME activity provider's responsibility to submit learner completion information to ACCME for the purpose of granting ABP MOC credit. By completing the requirements for this activity, the learner gives UW-Madison ICEP permission to share completion data with the ACCME and the certifying board(s). MOC credit is only available for the symposium on Friday, July 25. |
![]() | American Board of Internal Medicine (Maintenance of Certification-MOC)Successful completion of this CME activity, which includes participation in the evaluation component, enables the participant to earn up to 7.25 MOC points in the American Board of Internal Medicine's (ABIM) Maintenance of Certification (MOC) program. It is the CME activity provider's responsibility to submit participant completion information to ACCME for the purpose of granting ABIM MOC credit. By completing the requirements for this activity, the learner gives UW-Madison ICEP permission to share completion data with the ACCME and the certifying board(s). MOC credit is only available for the symposium on Friday, July 25. |
![]() | Continuing Education (CE) credits for psychologists are provided through the co-sponsorship of the American Psychological Association (APA) Office of Continuing Education in Psychology (CEP). The APA CEP Office maintains responsibility for the content of the programs. |
As a Jointly Accredited Organization, the University of Wisconsin–Madison ICEP is approved to offer social work continuing education by the Association of Social Work Boards (ASWB) Approved Continuing Education (ACE) program. Organizations, not individual courses, are approved under this program. Regulatory boards are the final authority on courses accepted for continuing education credit. Social workers completing this course receive 11.25 general, live continuing education credits. | |
American Nurses Credentialing Center (ANCC) | The University of Wisconsin–Madison ICEP designates this live activity for a maximum of 11.25 ANCC contact hours. |
Continuing Education Units (CEUs) | The University of Wisconsin–Madison ICEP, as a member of the University Professional & Continuing Education Association (UPCEA), authorizes this program for 1.125 CEUs or 11.25 hours. |
Available Credit
- 7.25 MOC: ABIM Medical Knowledge Points (Part II)
- 7.25 MOC: ABP Lifelong Learning Points (Part II)
- 11.25 AMA PRA Category 1 Credit™
- 11.25 ANCC Contact Hours
- 11.25 APA CE Credits
- 11.25 University of Wisconsin–Madison Continuing Education Hours
- 11.25 Approved for AMA PRA Category 1 Credit™
How to Register
- Select any additional options and click "Add to cart."
- Click "Checkout" and follow the prompts to complete your order.
- Before checkout, you will have the option to add a coupon code(s) to reduce the cost to the prices below. Refunds will not be given for the difference in price if applicable coupons are not used during registration.
- Be sure to make note of (or highlight and right-click>copy) the correct coupon code before you click "Add to cart" so you can add/paste it in the Coupon Code field.
- Once added, click "Apply coupon"
Registration for this activity can only be completed through the ICEP Learning Portal. Attendee registrations made through any other sites cannot be honored. UW-Madison ICEP is not able to refund fees paid through unaffiliated registration sites, such as eMedEvents.com, MedConfWorld.com, EventEgg.com, and 10times.com. Please report any unauthorized websites or solicitations for registrations to [email protected].
Symposium Fees
Group Discount:
$25 off per registration when two or more register from the same organization! Request Group Discount. This coupon code is only eligible with member and non-member rates (it cannot be used with the student/trainee rate).
Early Bird Fees (on or before May 31, 2025): Use Coupon Code 2025DEB
- Members of DSMIG-USA® in good standing: $325
- Non-members: $425
After May 31, 2025:
- Members of DSMIG-USA® in good standing: $350
- Non-members: $450
On-Site Registration Fee:
$450 (for everyone)
Student/Trainee:
- $199
Welcome Reception:
$40
Saturday Workgroups:
$30 each
Gratis Registration + Welcome Reception For:
- Scholarship Recipients
- Rising Star Scholarships
- Non-Member Speakers
Contact Emilie Perkins ([email protected]) regarding gratis registration
Cancellation and Refund Policy
Requests for cancellation must be submitted in writing to [email protected]. Cancellation requests received at least 96 hours prior to the symposium will allow a full refund except for the nonrefundable processing fee of $50. No refunds will be made for cancellations received less than 96 hours prior to the activity start date.
Accessibility
We value inclusion and access for all participants and are pleased to provide reasonable accommodation for this event. Please contact [email protected] as soon as you can to make a reasonable accommodation request.
For Further Information
For symposium information email Emilie Perkins at [email protected]. For registration assistance, email [email protected].
Program Changes
Emergency situations occasionally occur and may necessitate topic or speaker changes. The University of Wisconsin School of Medicine and Public Health and the University of Wisconsin–Madison ICEP reserve the right to alter or substitute a topic or speaker without prior notification.

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