2022 Down Syndrome Medical Interest Group-USA (DSMIG-USA®) Annual Symposium (Virtual Conference): All Times Central Time

June 16, 2022 to June 18, 2022

Symposium Description

The Down Syndrome Medical Interest Group-USA (DSMIG-USA) Annual Symposium provides an interdisciplinary forum for sharing of knowledge and experiences related to the clinical care of children and adults with Down syndrome, clinical research related to Down syndrome, and the development of Down syndrome clinics. The intended audience is DSMIG-USA members and other health professionals working and caring for people with Down syndrome including physicians, research scientists, physician assistants, nurses, nurse practitioners, Down syndrome clinic coordinators, psychologists, dietitians, occupational therapists, physical therapists, speech-language pathologists, social workers, and genetic counselors. Residents and trainees are also welcome.

Target Audience

This activity is intended for healthcare providers and researchers who have a special interest in the care of persons with Down syndrome including, but not limited to, Primary Care Physicians, Specialty Physicians, Research Scientists, Physician Assistants, Nurses, Nurse Practitioners, Occupational Therapists, Physical Therapists, Speech-Language Pathologists, Psychologists, Dietitians, Social Workers, Down Syndrome Clinic Coordinators, Residents, and Trainees.

Learning Objectives

As a result of participation in this educational activity, members of the healthcare team will:

  • Identify best practice management strategies for individuals who have Down syndrome along with their health management caregivers
  • Recognize and discuss trends in care for people with Down syndrome with interdisciplinary colleagues
  • Formulate best practice care plans with interdisciplinary colleagues to incorporate into their practice

Elements of Competence

This continuing education activity has been designed to change learner competence and focuses on the American Board of Medical Specialties areas of medical knowledge, patient care and procedural skills, and practice based learning and improvement. This activity also focuses on the interprofessional competencies of interprofessional communication, roles/responsibilities, and teams/teamwork.

Symposium Fees

Pre-Payment is required! There will be no day-of registration.

If you would like to attend, but are not able to do so due to financial hardship, we will be providing a limited number of scholarships. For more information, please email Emilie Perkins at eperkins@raybourn.com to express your interest in one of the scholarships before you register.

Symposium fees include a nonrefundable $20 cancellation fee.

  • Members of DSMIG-USA® in good standing: $129
  • Non-members: $179
  • Students/Trainees: $50
  • Group Discount: $20 off per registration when two or more register from the same organization! Request Group Discount
    This coupon code is only eligible with member and non-member rates (it cannot be used with the student/trainee rate). 

CANCELLATION AND REFUND POLICY

Requests for cancellation must be submitted in writing to help@icep.wisc.edu. Cancellations through May 13 will receive a full refund minus the $20 cancellation fee; May 14-May 31 there will be a 50% refund. No refunds will be made for cancellations received after May 31.

QUESTIONS ABOUT REGISTRATION

Email help@icep.wisc.edu.

FOR FURTHER INFORMATION

For symposium information contact Emilie Perkins at eperkins@raybourn.com.

PROGRAM CHANGES

Emergency situations occasionally occur and may necessitate topic or speaker changes. The University of Wisconsin School of Medicine and Public Health and the University of Wisconsin–Madison ICEP reserve the right to alter or substitute a topic or speaker without prior notification.

Course summary
Available credit: 
  • 6.50 MOC: ABIM Medical Knowledge Points (Part II)
  • 6.50 MOC: ABP Lifelong Learning Points (Part II)
  • 6.50 AMA PRA Category 1 Credit
  • 6.50 ANCC Contact Hours
  • 6.50 APA CE Credits
  • 6.50 ACE Credits
  • 6.50 University of Wisconsin–Madison Continuing Education Hours
    • 6.50 Approved for AMA PRA Category 1 Credit™
Registration opens: 
05/10/2022
Course expires: 
07/31/2022
Event starts: 
06/16/2022 - 6:15pm CDT
Event ends: 
06/18/2022 - 2:00pm CDT
Cost:
$179.00
Rating: 
0

Friday, June 17, 2022

ALL TIMES ARE CENTRAL TIME

AM 
9:00-9:10Welcome and Announcements, Maria Stanley, MD or Katie Frank, PhD, OTR/L
9:15-10:15Deprescribing Psychotropic Medications, David Lohr, MD; Dan Arnold, MD
10:20-11:20COVID-19 Vaccination of Individuals With Down Syndrome - Data From an International Survey and Clinical Visits From Three Centers in Europe, Andrew Nowalk, MD, PhD (Moderator); Anke Huels, PhD; Tilman Rohrer, MD; Angelo Carfi, MD; Diletta Valentini, MD
11:25-12:25Beyond Behavior Analysis: Exploring Other Strategies for Supporting Children With Down Syndrome, Amber Wright, MSN, CPNP, PMHS; Bethany Ziss, MD
PM 
12:25-12:55 Lunch Break
12:55-2:25Access, Value and Perspectives on Care in Down Syndrome Specialized Care Clinics: How Might We Use QI Methods to Improve Our Clinics, Nicole White, PhD, MBA; Albert Pless Jr.; MS; Terri Couwenhoven, MS; Stephanie Santoro, MD
2:30-2:40Break
2:40-3:25GI Issues and Down Syndrome, Steven Ciciora, MD
3:30-4:45Practice Changing Articles 2021-2022, Peter Bulova, MD; Kishore Vellody, MD; Celanie Christensen, MD, MS 
4:45-4:50Closing Announcements
5:00-5:45The NIH INCLUDE Project and its Data Coordinating Center (optional), Joaquin Espinosa, PhD; Melissa Parisi, MD, PhD (continuing education credit will not be awarded for this presentation)

ADDITIONAL ACTIVITIES

Thursday, June 16, 2022

The Thursday activities are not accredited for continuing education credit.

6:15-7:00 PM Member Meeting

Non-members welcome! Join us to learn about DSMIG-USA activities during the past year and plans for future activities.

7:00-8:00 PM Poster Session I

Friday, June 17, 2022

9:00 AM-5:45 PM Annual Symposium

The Friday workgroups are not accredited for continuing education credit.

5:45-6:30 PM Clinic Support Committee (TENTATIVE); Leader: Terri Couwenhoven, MS

This meeting, previously for Clinic Coordinators only, is now for any Down syndrome clinic staff member (new or seasoned) interested in receiving guidance and/or support for clinic development, management, or operations. During this meeting, attendees will learn about updates on the clinic support section of the DSMIG website, and then share needs and challenges, program ideas, and success stories.

5:50-6:50 PM Therapy Workgroup; Leader: Helen Milligan, PT, MPT

The Therapist Workgroup is a community within DSMIG-USA whose members are therapists and/or educators in the areas of Occupational Therapy, Physical Therapy, or Speech Therapy. The group has an interest in advancing knowledge regarding best practices as it relates to therapy when treating those with Down syndrome considering commonly seen issues which may respond to therapy interventions at various ages.

At this workshop meeting the group will:

  • Discuss and establish goals including timelines for the upcoming year
  • Establish committees in each discipline to begin literature review regarding best practice for children and adults with DS at different ages and to look at similar recommendations which have been made for other diagnoses.

Saturday, June 18, 2022

The Saturday activities are not accredited for continuing education credit.

9:00-10:00 AM Poster Session II

10:15 AM-12:15 PM Adolescent and Adult Health Workgroup; Leaders: George Capone, MD, Mary Stephens, MD, MPH, FAAFP, FAADM

This workgroup will provide an update on the Adult Healthcare Projects currently underway (medical literature reviews, MH/Regression, dementia screening, weight-lifestyle management, and CME activities). Group discussion, Q&A are planned.

12:30-2:00 PM DS-ASD Workgroup; Leaders: Lina Patel, PsyD; Noemi Spinazzi, MD

This workgroup will include discussions on what has been learned about DS-ASD in the past year, how to apply that learning to improving the quality of care for individuals with co-occurring Down syndrome and autism spectrum disorder, and what needs to be learned in the next year to advance our understanding of how best to serve the needs of these individuals and their families. A summary and updates regarding ongoing projects will be given in addition to applicable information for use within a clinical setting. 

 

This is a virtual conference (central time). Please see the program for further information.

SYMPOSIUM PRESENTERS

Dan Arnold, MD, University of Louisville

Peter Bulova, MD, Associate Professor of Medicine; Co-Director, Magee Center for Women with Disabilities; Director, University of Pittsburgh Adult Down Syndrome Center

George Capone, MD, Director, Kennedy Krieger Institute's Down Syndrome Clinic and Research Center

Angelo Carfì, MD, Fondazione Policlinico Gemelli IRCCS

Celanie Christensen, MD, MS, Assistant Professor of Clinical Pediatrics and Neurology, Indiana University School of Medicine

Steven Ciciora, MD, Nationwide Children's Hospital/The Ohio State University College of Medicine

Terri Couwenhoven, MS, Clinic Coordinator, Children's Hospital of Wisconsin-Down Syndrome Clinic

Joaquin Espinosa, PhD, Executive Director, Linda Crnic Institute for Down Syndrome

Anke Huels, PhD, Rollins School of Public Health, Emory University

David Lohr, MD, University of Louisville

Helen Milligan, PT, MPT, Physical Therapist, Physical Therapy Department, Children's Hospital of Philadelphia

Andrew Nowalk, MD, PhD, Associate Professor of Pediatrics, UPMC Children's Hospital of Pittsburgh

Melissa Parisi, MD, PhD, National Institutes of Health (NIH)

Lina Patel, PsyD, Director of Psychology at the Sie Center for Down Syndrome, Children's Hospital Colorado; Assistant Professor, University of Colorado School of Medicine

Albert Pless, Jr., MS, Massachusetts General Hospital

Tilman Rohrer, MD, Saarland University Medical Center

Stephanie Santoro, MD, Massachusetts General Hospital

Noemi Spinazzi, MD, Medical Director, Down Syndrome Clinic at UCSF Benoiff Children's Hospital Oakland; Assistant Clinical Professor, UCSF School of Medicine

Mary Stephens, MD, MPH, FAAFP, FAADM, Medical Director, Jefferson Continuing Care Program (JCCP), Associate Professor, Family and Community Medicine

Diletta Valentini, MD, Bambino Gesù Children's Hospital

Kishore Vellody, MD, Professor of Pediatrics; Medical Director of Down Syndrome Center of Pennsylvania; University of Pittsburgh School of Medicine

Nicole White, PhD, MBA, Cincinnati Children's Hospital Medical Center

Amber Wright, MSN, CPNP, PMHS, Oregon Health and Sciences University - IDD/CDRC - Eugene

Bethany Ziss, MD, AHN Pediatrics

SYMPOSIUM PLANNING COMMITTEE 

Nicole Baumer, MD, MEd, Director, Boston Children's Hospital Down Syndrome Program

Gabriela Eguiarte, MD, Pediatrician, Angeles Pedregal Hospital, Mexico

Katie Frank, PhD, OTR/L, Annual Symposium Committee Co-Chair; Occupational Therapist III, Advocate Medical Group Adult Down Syndrome Center

Amy Lyle, MSSW, Clinic Coordinator, Waisman Down Syndrome Clinic, University of Wisconsin-Madison

Andrew McCormick, MD, Director, Healthy Transitions Program, Down Syndrome Center of Western Pennsylvania; Associate Professor of Pediatrics, University of Pittsburgh School of Medicine

Lina Patel, PsyD, Director of Psychology at the Sie Center for Down Syndrome, Children's Hospital Colorado; Assistant Professor, University of Colorado School of Medicine

Emilie Perkins, Director of Client and Conference Services, Raybourn Group International

Moya Peterson, PhD, APRN, FNP-BC, Adults with Down Syndrome Specialty Clinic, Department of Family Medicine and Community Health, University of Kansas Medical Center

Noemi Spinazzi, MD, Medical Director, Down Syndrome Clinic at UCSF Benoiff Children's Hospital Oakland; Assistant Clinical Professor, UCSF School of Medicine

Maria Stanley, MD, FAAP, Annual Symposium Committee Co-Chair; Clinical Professor of Pediatrics, University of Wisconsin School of Medicine and Public Health; Medical Director, Waisman Center; Director, Down Syndrome Clinic

Nicole White, PhD, MBA, Cincinnati Children's Hospital Medical Center

Disclosure for the Annual Symposium on June 17:

Policy on Disclosure

It is the policy of the University of Wisconsin–Madison Interprofessional Continuing Education Partnership (ICEP) to identify, mitigate and disclose all relevant financial relationships with ineligible companies* held by the speakers, authors, planners, and other persons who may influence content of this accredited continuing education (CE). In addition, speakers and authors must disclose any planned discussion of unlabeled/unapproved uses of drugs or devices during their presentation. For this accredited continuing education activity all relevant financial relationships have been mitigated and detailed disclosures are listed below.

*Ineligible companies are those whose primary business is producing, marketing, selling, re-selling, or distributing healthcare products used by, or on, patients. The ACCME does not consider providers of clinical services directly to patients to be ineligible companies.

 

Discloser List CME Internal Report

Accreditation Statement

In support of improving patient care, this activity has been planned and implemented by the University of Wisconsin–Madison ICEP and the Down Syndrome Medical Interest Group-USA. The University of Wisconsin–Madison ICEP is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC) to provide continuing education for the healthcare team.

Credit Designation Statements

 
American Medical Association

The University of Wisconsin–Madison ICEP designates this live activity for a maximum of 6.5 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

American Board of Pediatrics (Maintenance of Certification-MOC)

Successful completion of this CME activity, which includes participation in the evaluation component, enables the learner to earn up to 6.5 MOC points in the American Board of Pediatrics' (ABP) Maintenance of Certification (MOC) program. It is the CME activity provider's responsibility to submit learner completion information to ACCME for the purpose of granting ABP MOC credit.

American Board of Internal Medicine (Maintenance of Certification-MOC)

Successful completion of this CME activity, which includes participation in the evaluation component, enables the participant to earn up to 6.5 Medical Knowledge MOC points in the American Board of Internal Medicine's (ABIM) Maintenance of Certification (MOC) program. Participants will earn MOC points equivalent to the amount of CME credits claimed for the activity. It is the CME activity provider's responsibility to submit participant completion information to ACCME for the purpose of granting ABIM MOC credit.

Continuing Education (CE) credits for psychologists are provided through the co-sponsorship of the American Psychological Association (APA) Office of Continuing Education in Psychology (CEP). The APA CEP Office maintains responsibility for the content of the programs.

PARTIAL CREDIT WILL NOT BE AWARDED; IN ORDER TO CLAIM CREDIT, ATTENDANCE AT THE ENTIRE PROGRAM IS REQUIRED.

 
Association of Social Work Boards (ASWB)

As a Jointly Accredited Organization, the University of Wisconsin–Madison Interprofessional Continuing Education Partnership (ICEP) is approved to offer social work continuing education by the Association of Social Work Boards (ASWB) Approved Continuing Education (ACE) program. Organizations, not individual courses, are approved under this program. State and provincial regulatory boards have the final authority to determine whether an individual course may be accepted for continuing education credit. The University of Wisconsin–Madison ICEP maintains responsibility for this course. Social workers completing this course receive 6.5 live continuing education credits.

American Nurses Credentialing Center (ANCC)

The University of Wisconsin–Madison ICEP designates this live activity for a maximum of 6.5 ANCC contact hours.

Continuing Education Units (CEUs)

The University of Wisconsin–Madison ICEP, as a member of the University Professional & Continuing Education Association (UPCEA), authorizes this program for .65 CEUs or 6.5 hours.

 

 

 

 

 

 

Available Credit

  • 6.50 MOC: ABIM Medical Knowledge Points (Part II)
  • 6.50 MOC: ABP Lifelong Learning Points (Part II)
  • 6.50 AMA PRA Category 1 Credit
  • 6.50 ANCC Contact Hours
  • 6.50 APA CE Credits
  • 6.50 ACE Credits
  • 6.50 University of Wisconsin–Madison Continuing Education Hours
    • 6.50 Approved for AMA PRA Category 1 Credit™

Price

Cost:
$179.00
Please login or register to take this course.

Symposium Fees

Pre-Payment is required! There will be no day-of registration.

If you would like to attend, but are not able to do so due to financial hardship, we will be providing a limited number of scholarships. For more information, please email Emilie Perkins at eperkins@raybourn.com to express your interest in one of the scholarships before you register.

Symposium fees include a nonrefundable $20 cancellation fee.

  • Members of DSMIG-USA® in good standing: $129
  • Non-members: $179
  • Students/Trainees: $50
  • Group Discount: $20 off per registration when two or more register from the same organization! Request Group Discount
    This coupon code is only eligible with member and non-member rates (it cannot be used with the student/trainee rate). 

CANCELLATION AND REFUND POLICY

Requests for cancellation must be submitted in writing to help@icep.wisc.edu. Cancellations through May 13 will receive a full refund minus the $20 cancellation fee; May 14-May 31 there will be a 50% refund. No refunds will be made for cancellations received after May 31.

QUESTIONS ABOUT REGISTRATION

Email help@icep.wisc.edu.

FOR FURTHER INFORMATION

For symposium information contact Emilie Perkins at eperkins@raybourn.com.

Required Hardware/software

Computer, tablet, or smartphone with audio sharing capabilities.