2022 Down Syndrome Medical Interest Group-USA (DSMIG-USA®) Annual Symposium (Virtual Conference): All Times Central Time
Symposium Description
The Down Syndrome Medical Interest Group-USA (DSMIG-USA) Annual Symposium provides an interdisciplinary forum for sharing of knowledge and experiences related to the clinical care of children and adults with Down syndrome, clinical research related to Down syndrome, and the development of Down syndrome clinics. The intended audience is DSMIG-USA members and other health professionals working and caring for people with Down syndrome including physicians, research scientists, physician assistants, nurses, nurse practitioners, Down syndrome clinic coordinators, psychologists, dietitians, occupational therapists, physical therapists, speech-language pathologists, social workers, and genetic counselors. Residents and trainees are also welcome.
Target Audience
This activity is intended for healthcare providers and researchers who have a special interest in the care of persons with Down syndrome including, but not limited to, Primary Care Physicians, Specialty Physicians, Research Scientists, Physician Assistants, Nurses, Nurse Practitioners, Occupational Therapists, Physical Therapists, Speech-Language Pathologists, Psychologists, Dietitians, Social Workers, Down Syndrome Clinic Coordinators, Residents, and Trainees.
Learning Objectives
As a result of participation in this educational activity, members of the healthcare team will:
- Identify best practice management strategies for individuals who have Down syndrome along with their health management caregivers
- Recognize and discuss trends in care for people with Down syndrome with interdisciplinary colleagues
- Formulate best practice care plans with interdisciplinary colleagues to incorporate into their practice
Elements of Competence
This continuing education activity has been designed to change learner competence and focuses on the American Board of Medical Specialties areas of medical knowledge, patient care and procedural skills, and practice based learning and improvement. This activity also focuses on the interprofessional competencies of interprofessional communication, roles/responsibilities, and teams/teamwork.
Symposium Fees
Pre-Payment is required! There will be no day-of registration.
If you would like to attend, but are not able to do so due to financial hardship, we will be providing a limited number of scholarships. For more information, please email Emilie Perkins at eperkins@raybourn.com to express your interest in one of the scholarships before you register.
Symposium fees include a nonrefundable $20 cancellation fee.
- Members of DSMIG-USA® in good standing: $129
- Non-members: $179
- Students/Trainees: $50
- Group Discount: $20 off per registration when two or more register from the same organization! Request Group Discount
This coupon code is only eligible with member and non-member rates (it cannot be used with the student/trainee rate).
CANCELLATION AND REFUND POLICY
Requests for cancellation must be submitted in writing to help@icep.wisc.edu. Cancellations through May 13 will receive a full refund minus the $20 cancellation fee; May 14-May 31 there will be a 50% refund. No refunds will be made for cancellations received after May 31.
QUESTIONS ABOUT REGISTRATION
Email help@icep.wisc.edu.
FOR FURTHER INFORMATION
For symposium information contact Emilie Perkins at eperkins@raybourn.com.
PROGRAM CHANGES
Emergency situations occasionally occur and may necessitate topic or speaker changes. The University of Wisconsin School of Medicine and Public Health and the University of Wisconsin–Madison ICEP reserve the right to alter or substitute a topic or speaker without prior notification.
Friday, June 17, 2022
ALL TIMES ARE CENTRAL TIME
AM | |
9:00-9:10 | Welcome and Announcements, Maria Stanley, MD or Katie Frank, PhD, OTR/L |
9:15-10:15 | Deprescribing Psychotropic Medications, David Lohr, MD; Dan Arnold, MD |
10:20-11:20 | COVID-19 Vaccination of Individuals With Down Syndrome - Data From an International Survey and Clinical Visits From Three Centers in Europe, Andrew Nowalk, MD, PhD (Moderator); Anke Huels, PhD; Tilman Rohrer, MD; Angelo Carfi, MD; Diletta Valentini, MD |
11:25-12:25 | Beyond Behavior Analysis: Exploring Other Strategies for Supporting Children With Down Syndrome, Amber Wright, MSN, CPNP, PMHS; Bethany Ziss, MD |
PM | |
12:25-12:55 | Lunch Break |
12:55-2:25 | Access, Value and Perspectives on Care in Down Syndrome Specialized Care Clinics: How Might We Use QI Methods to Improve Our Clinics, Nicole White, PhD, MBA; Albert Pless Jr.; MS; Terri Couwenhoven, MS; Stephanie Santoro, MD |
2:30-2:40 | Break |
2:40-3:25 | GI Issues and Down Syndrome, Steven Ciciora, MD |
3:30-4:45 | Practice Changing Articles 2021-2022, Peter Bulova, MD; Kishore Vellody, MD; Celanie Christensen, MD, MS |
4:45-4:50 | Closing Announcements |
5:00-5:45 | The NIH INCLUDE Project and its Data Coordinating Center (optional), Joaquin Espinosa, PhD; Melissa Parisi, MD, PhD (continuing education credit will not be awarded for this presentation) |
ADDITIONAL ACTIVITIES
Thursday, June 16, 2022
The Thursday activities are not accredited for continuing education credit.
6:15-7:00 PM Member Meeting
Non-members welcome! Join us to learn about DSMIG-USA activities during the past year and plans for future activities.
7:00-8:00 PM Poster Session I
Friday, June 17, 2022
9:00 AM-5:45 PM Annual Symposium
The Friday workgroups are not accredited for continuing education credit.
5:45-6:30 PM Clinic Support Committee; Leader: Terri Couwenhoven, MS
This meeting, previously for Clinic Coordinators only, is now for any Down syndrome clinic staff member (new or seasoned) interested in receiving guidance and/or support for clinic development, management, or operations. During this meeting, attendees will learn about updates on the clinic support section of the DSMIG website, and then share needs and challenges, program ideas, and success stories.
5:50-6:50 PM Therapy Workgroup; Leader: Helen Milligan, PT, MPT
The Therapist Workgroup is a community within DSMIG-USA whose members are therapists and/or educators in the areas of Occupational Therapy, Physical Therapy, or Speech Therapy. The group has an interest in advancing knowledge regarding best practices as it relates to therapy when treating those with Down syndrome considering commonly seen issues which may respond to therapy interventions at various ages.
At this workshop meeting the group will:
- Discuss and establish goals including timelines for the upcoming year
- Establish committees in each discipline to begin literature review regarding best practice for children and adults with DS at different ages and to look at similar recommendations which have been made for other diagnoses.
Saturday, June 18, 2022
The Saturday activities are not accredited for continuing education credit.
9:00-10:00 AM Poster Session II
10:15 AM-12:15 PM Adolescent and Adult Health Workgroup; Leaders: George Capone, MD, Mary Stephens, MD, MPH, FAAFP, FAADM
This workgroup will provide an update on the Adult Healthcare Projects currently underway (medical literature reviews, MH/Regression, dementia screening, weight-lifestyle management, and CME activities). Group discussion, Q&A are planned.
12:30-2:00 PM DS-ASD Workgroup; Leaders: Lina Patel, PsyD; Noemi Spinazzi, MD; Margaret Froehlke, RN, BSN
This workgroup will include discussions on what has been learned about DS-ASD in the past year, how to apply that learning to improving the quality of care for individuals with co-occurring Down syndrome and autism spectrum disorder, and what needs to be learned in the next year to advance our understanding of how best to serve the needs of these individuals and their families. A summary and updates regarding ongoing projects will be given in addition to applicable information for use within a clinical setting.
This is a virtual conference (central time). Please see the program for further information.
SYMPOSIUM PRESENTERS
Dan Arnold, MD, University of Louisville
Peter Bulova, MD, Associate Professor of Medicine; Co-Director, Magee Center for Women with Disabilities; Director, University of Pittsburgh Adult Down Syndrome Center
George Capone, MD, Director, Kennedy Krieger Institute's Down Syndrome Clinic and Research Center
Angelo Carfì, MD, Fondazione Policlinico Gemelli IRCCS
Celanie Christensen, MD, MS, Assistant Professor of Clinical Pediatrics and Neurology, Indiana University School of Medicine
Steven Ciciora, MD, Nationwide Children's Hospital/The Ohio State University College of Medicine
Terri Couwenhoven, MS, Clinic Coordinator, Children's Hospital of Wisconsin-Down Syndrome Clinic
Joaquin Espinosa, PhD, Executive Director, Linda Crnic Institute for Down Syndrome
Margaret Froehlke, RN, BSN
Anke Huels, PhD, Rollins School of Public Health, Emory University
David Lohr, MD, University of Louisville
Helen Milligan, PT, MPT, Physical Therapist, Physical Therapy Department, Children's Hospital of Philadelphia
Andrew Nowalk, MD, PhD, Associate Professor of Pediatrics, UPMC Children's Hospital of Pittsburgh
Melissa Parisi, MD, PhD, National Institutes of Health (NIH)
Lina Patel, PsyD, Director of Psychology at the Sie Center for Down Syndrome, Children's Hospital Colorado; Assistant Professor, University of Colorado School of Medicine
Albert Pless, Jr., MS, Massachusetts General Hospital
Tilman Rohrer, MD, Saarland University Medical Center
Stephanie Santoro, MD, Massachusetts General Hospital
Noemi Spinazzi, MD, Medical Director, Down Syndrome Clinic at UCSF Benoiff Children's Hospital Oakland; Assistant Clinical Professor, UCSF School of Medicine
Mary Stephens, MD, MPH, FAAFP, FAADM, Medical Director, Jefferson Continuing Care Program (JCCP), Associate Professor, Family and Community Medicine
Diletta Valentini, MD, Bambino Gesù Children's Hospital
Kishore Vellody, MD, Professor of Pediatrics; Medical Director of Down Syndrome Center of Pennsylvania; University of Pittsburgh School of Medicine
Nicole White, PhD, MBA, Cincinnati Children's Hospital Medical Center
Amber Wright, MSN, CPNP, PMHS, Oregon Health and Sciences University - IDD/CDRC - Eugene
Bethany Ziss, MD, AHN Pediatrics
SYMPOSIUM PLANNING COMMITTEE
Nicole Baumer, MD, MEd, Director, Boston Children's Hospital Down Syndrome Program
Gabriela Eguiarte, MD, Pediatrician, Angeles Pedregal Hospital, Mexico
Katie Frank, PhD, OTR/L, Annual Symposium Committee Co-Chair; Occupational Therapist III, Advocate Medical Group Adult Down Syndrome Center
Amy Lyle, MSSW, Clinic Coordinator, Waisman Down Syndrome Clinic, University of Wisconsin-Madison
Andrew McCormick, MD, Director, Healthy Transitions Program, Down Syndrome Center of Western Pennsylvania; Associate Professor of Pediatrics, University of Pittsburgh School of Medicine
Lina Patel, PsyD, Director of Psychology at the Sie Center for Down Syndrome, Children's Hospital Colorado; Assistant Professor, University of Colorado School of Medicine
Emilie Perkins, Director of Client and Conference Services, Raybourn Group International
Moya Peterson, PhD, APRN, FNP-BC, Adults with Down Syndrome Specialty Clinic, Department of Family Medicine and Community Health, University of Kansas Medical Center
Noemi Spinazzi, MD, Medical Director, Down Syndrome Clinic at UCSF Benoiff Children's Hospital Oakland; Assistant Clinical Professor, UCSF School of Medicine
Maria Stanley, MD, FAAP, Annual Symposium Committee Co-Chair; Clinical Professor of Pediatrics, University of Wisconsin School of Medicine and Public Health; Medical Director, Waisman Center; Director, Down Syndrome Clinic
Nicole White, PhD, MBA, Cincinnati Children's Hospital Medical Center
Disclosure for the Annual Symposium on June 17:
Policy on Disclosure
It is the policy of the University of Wisconsin–Madison Interprofessional Continuing Education Partnership (ICEP) to identify, mitigate and disclose all relevant financial relationships with ineligible companies* held by the speakers, authors, planners, and other persons who may influence content of this accredited continuing education (CE). In addition, speakers and authors must disclose any planned discussion of unlabeled/unapproved uses of drugs or devices during their presentation. For this accredited continuing education activity all relevant financial relationships have been mitigated and detailed disclosures are listed below.
*Ineligible companies are those whose primary business is producing, marketing, selling, re-selling, or distributing healthcare products used by, or on, patients. The ACCME does not consider providers of clinical services directly to patients to be ineligible companies.
NAME |
ROLE(S) |
FINANCIAL RELATIONSHIPS DISCLOSURE | DISCUSSION OF UNLABELED/ |
---|---|---|---|
Daniel Arnold, MD | Presenter | No relevant relationships with ineligible companies to disclose | No |
Nicole Baumer, MD, MEd | Planner | No relevant relationships with ineligible companies to disclose | N/A |
Peter Bulova, MD | Presenter | No relevant relationships with ineligible companies to disclose | No |
Angelo Carfi, MD | Presenter | No relevant relationships with ineligible companies to disclose | No |
Celanie Christensen, MD, MS | Presenter | No relevant relationships with ineligible companies to disclose | No |
Steven Ciciora, MD | Presenter | Pfizer (Dependent Child: Contractor) | No |
Terri Couwenhoven, MS | Presenter | No relevant relationships with ineligible companies to disclose | No |
Gabriela Eguiarte, MD | Planner | No relevant relationships with ineligible companies to disclose | No |
Katie Frank, PhD, OTR/L | Planner, Content Reviewer | No relevant relationships with ineligible companies to disclose | No |
Anke Huels, PhD | Presenter | No relevant relationships with ineligible companies to disclose | No |
David Lohr, MD | Presenter | No relevant relationships with ineligible companies to disclose | Yes |
Amy Lyle, MSSW | Planner | No relevant relationships with ineligible companies to disclose | No |
Andrew McCormick, MD | Planner | No relevant relationships with ineligible companies to disclose | No |
Cathy Means, MS | Planner | No relevant relationships with ineligible companies to disclose | No |
Andrew Nowalk, MD, PhD | Presenter | No relevant relationships with ineligible companies to disclose | No |
Lina Patel, PsyD | Planner | No relevant relationships with ineligible companies to disclose | No |
Emilie Perkins | Planner | No relevant relationships with ineligible companies to disclose | No |
Moya Peterson, PhD, APRN | Planner | No relevant relationships with ineligible companies to disclose | No |
Albert Pless Jr., MS | Presenter | No relevant relationships with ineligible companies to disclose | No |
Tilman Rohrer, MD | Presenter | Alexion Pharmaceuticals, BioMarin Pharmaceutical, Merck, Novo Nordisk (All Contractor) | Yes |
Stephanie Santoro, MD | Presenter | No relevant relationships with ineligible companies to disclose | No |
Noemi Spinazzi, MD | Planner | Bracco Diagnostics Inc., Konica Minolta Healthcare Americas, Inc. (Both Grant) | No |
Maria Stanley, MD, FAAP | Medical Director, Planner | Takeda Development Center Americas, Inc. (Contractor) | No |
Diletta Valentini, MD | Presenter | No relevant relationships with ineligible companies to disclose | No |
Kishore Vellody, MD | Presenter | No relevant relationships with ineligible companies to disclose | No |
Nicole White, PhD, MBA | Planner, Presenter | No relevant relationships with ineligible companies to disclose | No |
Amber Wright, MSN, CPNP | Presenter | No relevant relationships with ineligible companies to disclose | No |
Bethany Ziss, MD | Presenter | No relevant relationships with ineligible companies to disclose | No |
Accreditation Statement
In support of improving patient care, this activity has been planned and implemented by the University of Wisconsin–Madison ICEP and the Down Syndrome Medical Interest Group-USA. The University of Wisconsin–Madison ICEP is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC) to provide continuing education for the healthcare team. | |
Credit Designation Statements | |
American Medical Association | The University of Wisconsin–Madison ICEP designates this live activity for a maximum of 6.5 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity. |
American Board of Pediatrics (Maintenance of Certification-MOC)Successful completion of this CME activity, which includes participation in the evaluation component, enables the learner to earn up to 6.5 MOC points in the American Board of Pediatrics' (ABP) Maintenance of Certification (MOC) program. It is the CME activity provider's responsibility to submit learner completion information to ACCME for the purpose of granting ABP MOC credit. | |
American Board of Internal Medicine (Maintenance of Certification-MOC)Successful completion of this CME activity, which includes participation in the evaluation component, enables the participant to earn up to 6.5 Medical Knowledge MOC points in the American Board of Internal Medicine's (ABIM) Maintenance of Certification (MOC) program. Participants will earn MOC points equivalent to the amount of CME credits claimed for the activity. It is the CME activity provider's responsibility to submit participant completion information to ACCME for the purpose of granting ABIM MOC credit. | |
Continuing Education (CE) credits for psychologists are provided through the co-sponsorship of the American Psychological Association (APA) Office of Continuing Education in Psychology (CEP). The APA CEP Office maintains responsibility for the content of the programs. PARTIAL CREDIT WILL NOT BE AWARDED; IN ORDER TO CLAIM CREDIT, ATTENDANCE AT THE ENTIRE PROGRAM IS REQUIRED. | |
Association of Social Work Boards (ASWB) | As a Jointly Accredited Organization, the University of Wisconsin–Madison Interprofessional Continuing Education Partnership (ICEP) is approved to offer social work continuing education by the Association of Social Work Boards (ASWB) Approved Continuing Education (ACE) program. Organizations, not individual courses, are approved under this program. State and provincial regulatory boards have the final authority to determine whether an individual course may be accepted for continuing education credit. The University of Wisconsin–Madison ICEP maintains responsibility for this course. Social workers completing this course receive 6.5 live continuing education credits. |
American Nurses Credentialing Center (ANCC) | The University of Wisconsin–Madison ICEP designates this live activity for a maximum of 6.5 ANCC contact hours. |
Continuing Education Units (CEUs) | The University of Wisconsin–Madison ICEP, as a member of the University Professional & Continuing Education Association (UPCEA), authorizes this program for .65 CEUs or 6.5 hours. |
Available Credit
- 6.50 MOC: ABIM Medical Knowledge Points (Part II)
- 6.50 MOC: ABP Lifelong Learning Points (Part II)
- 6.50 AMA PRA Category 1 Credit™
- 6.50 ANCC Contact Hours
- 6.50 APA CE Credits
- 6.50 University of Wisconsin–Madison Continuing Education Hours
- 6.50 Approved for AMA PRA Category 1 Credit™
Symposium Fees
Pre-Payment is required! There will be no day-of registration.
If you would like to attend, but are not able to do so due to financial hardship, we will be providing a limited number of scholarships. For more information, please email Emilie Perkins at eperkins@raybourn.com to express your interest in one of the scholarships before you register.
Symposium fees include a nonrefundable $20 cancellation fee.
- Members of DSMIG-USA® in good standing: $129
- Non-members: $179
- Students/Trainees: $50
- Group Discount: $20 off per registration when two or more register from the same organization! Request Group Discount
This coupon code is only eligible with member and non-member rates (it cannot be used with the student/trainee rate).
CANCELLATION AND REFUND POLICY
Requests for cancellation must be submitted in writing to help@icep.wisc.edu. Cancellations through May 13 will receive a full refund minus the $20 cancellation fee; May 14-May 31 there will be a 50% refund. No refunds will be made for cancellations received after May 31.
QUESTIONS ABOUT REGISTRATION
Email help@icep.wisc.edu.
FOR FURTHER INFORMATION
For symposium information contact Emilie Perkins at eperkins@raybourn.com.
Required Hardware/software
Computer, tablet, or smartphone with audio sharing capabilities.