Down Syndrome Medical Interest Group-USA Speaker Series: The First Evidence-Based Medical Care Guidelines for Adults With Down Syndrome - What Medical Providers Need to Know! 1/11/2022

January 11, 2022

DATE/TIME

January 11, 2022, 6:00-7:00 PM Central Time

To register for the January 11, 2022, program, please hit the REGISTER tab > BEGIN; more information will be available in the near future regarding registration for the remaining 2022 programs.

PROGRAM DESCRIPTION

Adults with Down syndrome require specific medical care that can differ from the general population, but most do not have access to Down syndrome-specific medical providers. To address this need, the Global Down Syndrome Foundation Medical Care Guidelines for Adults with Down Syndrome were created and published in JAMA in 2020. In this webinar, GLOBAL Guideline authors will share the 9 medical topics covered in the first version of the guidelines and the evidence supporting the guideline's 14 recommendation statements. Attendees will learn how to access and share the Global Guideline with their patients, plus get a look at the newly created toolkits, language translations and family-friendly version. In addition, the speakers will share the current gaps in the literature base and the future research needed for the next Global Guideline update, expected in 2025-2026.

OVERVIEW

The Down Syndrome Medical Interest Group-USA (DSMIG-USA®) Speaker Series consists of webinars and enduring materials designed to share knowledge and experience related to the care of children and adults with Down syndrome and clinical research related to Down syndrome. The intended audience includes primary care physicians, specialty physicians, advanced practice providers, psychologists, dietitians, occupational and physical therapists, speech-language pathologists, social workers, genetic counselors, research scientists, residents, and trainees. The education includes live webinars that will be recorded and posted later as enduring materials. There will be a separate registration for the enduring programs.

STATEMENT OF NEED

The recommendations for medical care for individuals with Down syndrome is constantly evolving. Although current health supervision guidelines exist, there are large gaps in the knowledge about optimal care practices. Training in caring for individuals with Down syndrome is often limited in medical schools and residency programs. Health care providers with in-depth knowledge about caring for individuals with Down syndrome are limited in number and providing an opportunity for those experts to share their knowledge can be beneficial to others caring for people with Down syndrome.

TARGET AUDIENCE

This educational activity is intended for primary care physicians, specialty physicians, advanced practice providers, psychologists, dietitians, occupational and physical therapists, speech-language pathologists, social workers, genetic counselors, research scientists, residents, and trainees.

ACTIVITY OBJECTIVES

The learning objectives for this activity are to:

  • Identify best practice management strategies for individuals with Down syndrome and their caregivers
  • Recognize and discuss trends, with interprofessional colleagues, in care for people with Down syndrome
  • Formulate best practice care plans with interprofessional colleagues to incorporate into their practice

ELEMENTS OF COMPETENCE

This activity has been designed to change learner competence and focuses on the American Board of Medical Specialties areas of patient care and procedural skills, medical knowledge, and practice-based learning and improvement, in addition to the interprofessional competencies of roles and responsibilities, communication, and teams and teamwork.

REGISTRATION FEE

There is no fee to attend the presentations. If you would like to make a donation to DSMIG-USA, please visit the donation page at https://www.dsmig-usa.org/Donate.

 

Course summary
Available credit: 
  • 1.00 MOC: ABIM Medical Knowledge Points (Part II)
  • 1.00 MOC: ABP Lifelong Learning Points (Part II)
  • 1.00 AMA PRA Category 1 Credit™
  • 1.00 ANCC Contact Hours
  • 1.00 APA CE Credits
  • 1.00 ACE Credits
  • 1.00 University of Wisconsin–Madison Continuing Education Hours
    • 1.00 Approved for AMA PRA Category 1 Credit™
Registration opens: 
12/17/2021
Course expires: 
02/24/2022
Event starts: 
01/11/2022 - 6:00pm CST
Event ends: 
01/11/2022 - 7:00pm CST
Cost:
$0.00
Part of: 
Down Syndrome Medical Interest Group-USA (DSMIG-USA®) Speaker Series: October, 2021 - October, 2022
Add to calendar: 
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PROGRAM NAME: The First Evidence-Based Medical Care Guidelines for Adults With Down Syndrome - What Medical Providers Need to Know!

January 11, 2022, 6:00-7:00 PM Central Time

PROGRAM DESCRIPTION

Adults with Down syndrome require specific medical care that can differ from the general population, but most do not have access to Down syndrome-specific medical providers. To address this need, the Global Down Syndrome Foundation Medical Care Guidelines for Adults with Down Syndrome were created and published in JAMA in 2020. In this webinar, GLOBAL Guideline authors will share the 9 medical topics covered in the first version of the guidelines and the evidence supporting the guideline's 14 recommendation statements. Attendees will learn how to access and share the Global Guideline with their patients, plus get a look at the newly created toolkits, language translations and family-friendly version. In addition, the speakers will share the current gaps in the literature base and the future research needed for the next Global Guideline update, expected in 2025-2026.

PROGRAM PRESENTERS 

Peter Bulova, MD, Associate Professor of Medicine; Co-Director, Magee Center for Women with Disabilities; Director, University of Pittsburgh Adult Down Syndrome Center

Brian Chicoine, MD, Medical Director, Advocate Medical Group Adult Down Syndrome Center; Faculty, Lutheran General Hospital Family Medicine Residency

Bryn Gelaro, LSW, Senior Director of Adult Initiatives and Special Projects, Global Down Syndrome Foundation

FUTURE SERIES PROGRAMS:

Behavior in People with Down Syndrome

  • Proposed Date: March, 2022
  • Presenters: Katie Frank, PhD, OTR/L; Lina Patel, PsyD

Pediatric Health Care Guidelines

  • Proposed Date: May, 2022
  • Presenter: Marilyn Bull, MD, FAAP

This is a live virtual conference (central time). Please see the Program for further information.

A link will be sent to participants prior to the activity start date.

PLANNING COMMITTEE

Marilyn Bull, MD, FAAP, Morris Green Professor Emeritus, Department of Pediatrics, Indiana University School of Medicine; Neurodevelopmental Pediatrician, Riley Hospital for Children

Peter Bulova, MD, Associate Professor of General Internal Medicine; Co-Director, Magee Center for Women with Disabilities; Director, University of Pittsburgh Adult Down Syndrome Center; Director, The Department of Medicine Internal Scholars Track

Brian Chicoine, MD, (Conference Director), Medical Director, Advocate Medical Group Adult Down Syndrome Center; Faculty, Lutheran General Hospital Family Medicine Residency

Katie Frank, PhD, OTR/L, Occupational Therapist III, Advocate Medical Group Adult Down Syndrome Center

Angela Lombardo, BA, Linking Hands Coordinator, Leadership Education in Neurodevelopmental and Related Disabilities (LEND) Family Faculty

Amy Lyle, MSSW, Clinic Coordinator, Waisman Down Syndrome Clinic, University of Wisconsin–Madison

Lina Patel, PsyD, Director of Psychology at the Sie Center for Down Syndrome, Children's Hospital Colorado; Assistant Professor, University of Colorado School of Medicine

Emilie Perkins, Director of Client and Conference Services, Raybourn Group International

Moya Peterson, PhD, APRN, FNP-BC, Adults with Down Syndrome Specialty Clinic, Department of Family Medicine and Community Health, University of Kansas Medical Center

Stephanie Santoro, MD, Clinical Geneticist; Director of Quality Improvement Research, Down Syndrome Program; Assistant in Pediatrics, Harvard Medical School

Maria Stanley, MD, FAAP, Annual Symposium Committee Co-Chair; Clinical Professor of Pediatrics, University of Wisconsin School of Medicine and Public Health; Medical Director, Waisman Center; Director, Down Syndrome Clinic

Mary Stephens, MD, MPH, FAAFP, FAADM, Medical Director, Jefferson Continuing Care Program (JCCP), Associate Professor, Family and Community Medicine

PROGRAM PRESENTERS 

Peter Bulova, MD, Associate Professor of Medicine; Co-Director, Magee Center for Women with Disabilities; Director, University of Pittsburgh Adult Down Syndrome Center

Brian Chicoine, MD, Medical Director, Advocate Medical Group Adult Down Syndrome Center; Faculty, Lutheran General Hospital Family Medicine Residency

Bryn Gelaro, LSW, Senior Director of Adult Initiatives and Special Projects, Global Down Syndrome Foundation

Policy on Disclosure

It is the policy of the University of Wisconsin–Madison Interprofessional Continuing Education Partnership (ICEP) to identify, mitigate and disclose all relevant financial relationships with ineligible companies* held by the speakers/presenters, authors, planners, and other persons who may influence content of this accredited continuing education (CE). In addition, speakers/presenters and authors must disclose any planned discussion of unlabeled/unapproved uses of drugs or devices during their presentation. For this accredited continuing education activity all relevant financial relationships have been mitigated and detailed disclosures are listed below.

NAMEROLE(s)FINANCIAL RELATIONSHIPS DISCLOSUREDISCUSSION OF UNLABELED/UNAPPROVED USES OF DRUGS/DEVICES IN PRESENTATION?
Marilyn Bull, MD, FAAPCommittee Member, SpeakerNo relevant relationships with ineligible companies to discloseNo
Peter Bulova, MDCommittee Member, SpeakerNo relevant relationships with ineligible companies to discloseNo
Brian Chicoine, MDCourse Director, Committee Member, SpeakerNo relevant relationships with ineligible companies to discloseNo
Katie Frank, PhD, OTR/LCommittee Member,SpeakerNo relevant relationships with ineligible companies to discloseNo
Bryn Gelaro, LSWSpeakerNo relevant relationships with ineligible companies to discloseNo
Angela Lombardo, BACommittee MemberNo relevant relationships with ineligible companies to discloseNo
Amy Lyle, MSSWCommittee MemberNo relevant relationships with ineligible companies to discloseNo
Cathy MeansPlannerNo relevant relationships with ineligible companies to discloseNo
Lina Patel, PsyDCommittee Member, SpeakerNo relevant relationships with ineligible companies to discloseNo
Emilie PerkinsPlannerNo relevant relationships with ineligible companies to discloseNo
Moya Peterson, PhD, APRNCommittee MemberNo relevant relationships with ineligible companies to discloseNo
Stephanie Santoro, MDCommittee MemberNo relevant relationships with ineligible companies to discloseNo
Maria Stanley, MDCommittee MemberNo relevant relationships with ineligible companies to discloseNo
Mary Stephens, MD, MPHCommittee Member, SpeakerNo relevant relationships with ineligible companies to discloseNo

*Ineligible companies are those whose primary business is producing, marketing, selling, re-selling, or distributing healthcare products used by, or on, patients. The ACCME does not consider providers of clinical services directly to patients to be ineligible companies.

Discloser List CME Internal Report

Accreditation Statement

Jointly Accredited Provider LogoIn support of improving patient care, this activity has been planned and implemented by the University of Wisconsin–Madison Interprofessional Continuing Education Partnership (ICEP) and the Down Syndrome Medical Interest Group–USA. The University of Wisconsin–Madison ICEP is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC) to provide continuing education for the healthcare team.

Credit Designation Statements

 

 

American Medical Association (AMA)

The University of Wisconsin-Madison ICEP designates this live activity for a maximum of 1 AMA PRA Category 1 Credit™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

 

American Nurses Credentialing Center (ANCC)

The University of Wisconsin–Madison ICEP designates this live activity for a maximum of 1 ANCC contact hour.

American Psychological Association (APA)

Continuing Education (CE) credits for psychologists are provided through the co-sponsorship of the American Psychological Association (APA) Office of Continuing Education in Psychology (CEP). The APA CEP Office maintains responsibility for the content of the programs.

 

ASWB Approved Continuing Education (ACE) Social Work Credit

As a Jointly Accredited Organization, the University of Wisconsin–Madison ICEP is approved to offer social work continuing education by the Association of Social Work Boards (ASWB) Approved Continuing Education (ACE) program. Organizations, not individual courses, are approved under this program. State and provincial regulatory boards have the final authority to determine whether an individual course may be accepted for continuing education credit. The University of Wisconsin–Madison ICEP maintains responsibility for this course. Social workers completing this course receive 1 live continuing education credit.

 

Continuing Education Units (CEUs)

The University of Wisconsin–Madison ICEP, as a member of the University Professional & Continuing Education Association (UPCEA), authorizes this program for .1 CEUs or 1 hour.

American Board of Pediatrics (Maintenance of Certification-MOC)

Successful completion of this CME activity, which includes participation in the evaluation component, enables the learner to earn up to 1 MOC point in the American Board of Pediatrics' (ABP) Maintenance of Certification (MOC) program. It is the CME activity provider's responsibility to submit learner completion information to ACCME for the purpose of granting ABP MOC credit.

American Board of Internal Medicine (Maintenance of Certification-MOC)

Successful completion of this CME activity, which includes participation in the evaluation component, enables the participant to earn up to 1 Medical Knowledge MOC point in the American Board of Internal Medicine's (ABIM) Maintenance of Certification (MOC) program. Participants will earn MOC points equivalent to the amount of CME credits claimed for the activity. It is the CME activity provider's responsibility to submit participant completion information to ACCME for the purpose of granting ABIM MOC credit.

 

 

 

Available Credit

  • 1.00 MOC: ABIM Medical Knowledge Points (Part II)
  • 1.00 MOC: ABP Lifelong Learning Points (Part II)
  • 1.00 AMA PRA Category 1 Credit™
  • 1.00 ANCC Contact Hours
  • 1.00 APA CE Credits
  • 1.00 ACE Credits
  • 1.00 University of Wisconsin–Madison Continuing Education Hours
    • 1.00 Approved for AMA PRA Category 1 Credit™

Cost:
$0.00
Please login or register to take this course.

Registration Fee

There is no fee to attend the presentations. If you would like to make a donation to DSMIG-USA, please visit the donation page at https://www.dsmig-usa.org/Donate.

Program Changes

Emergency situations occasionally occur and may necessitate topic or speaker changes. The KNN, University of Wisconsin School of Medicine and Public Health and the University of Wisconsin–Madison ICEP reserve the right to alter or substitute a topic or speaker without prior notification.

Accessibility

The University of Wisconsin provides equal opportunities in employment and programming, including Title IX requirements. The University of Wisconsin fully complies with the legal requirements of the ADA and the rules and regulations thereof. If any participant in this educational activity is in need of accommodations, please notify us at help@icep.wisc.edu.

For Further Information

For conference information or details, please contact Emilie Perkins at eperkins@raybourn.com.

 

Required Hardware/software

Computer, tablet, or smartphone with audio sharing capabilities.