Cure SMA Clinical Care Session 2022 Conference

Anaheim, CA US
June 15, 2022

TARGET AUDIENCE

This activity is intended for health care providers who diagnose and care for people affected by SMA, including physicians, nurse practitioners, physician assistants and nurses, pediatric and adult specialists including neurologists, pulmonologists, rehabilitation medicine, genetics, orthopedic surgery, palliative care, physical and occupational therapists, speech and language pathologists, pharmacists, nutritionists, genetic counselors, social workers, respiratory therapists, and trainees in the above disciplines.

ACTIVITY OBJECTIVES

The learning objectives for this activity are:

  • Demonstrate knowledge of multidisciplinary team roles and responsibilities in care management to optimize SMA outcomes
  • Describe the existing and evolving treatment options for patients with SMA
  • Describe the impact of new treatments on the SMA phenotype
  • Analyze factors that affect individual nutrition plans for individuals with SMA, including tube feeding formula and oral diet recommendations, and how these recommendations are evolving with disease-modifying therapies

ELEMENTS OF COMPETENCE

This activity has been designed to change learner competence and focuses on the American Board of Medical Specialties areas of patient care and procedural skills, medical knowledge, practice-based learning and improvement, interpersonal and communication skills, professionalism, and systems-based practice. This activity also focuses on the interprofessional competencies of values/ethics for interprofessional practice, interprofessional communication, and teams/teamwork.

Course summary
Available credit: 
  • 5.25 ACPE Contact Hours - Pharmacist
  • 5.25 AMA PRA Category 1 Credit
  • 5.25 ANCC Contact Hours
  • 5.25 APA CE Credits
  • 5.25 CDR CPEUs
  • 5.25 Occupational Therapy (OT) CE Contact Hours
  • 5.25 Physical Therapy Contact Hours
  • 5.25 ACE Credits
  • 5.25 University of Wisconsin–Madison Continuing Education Hours
    • 5.25 Approved for AMA PRA Category 1 Credit™
Registration opens: 
03/14/2022
Course expires: 
07/30/2022
Event starts: 
06/15/2022 - 8:30am CDT
Event ends: 
06/15/2022 - 4:00pm CDT
Cost:
$0.00
Rating: 
0
AM 
8:30Welcome and CMO Update
8:45Update on Cure SMA Real World Evidence Data Collection
9:00Proposal to Implement Cognitive and Language Screening Evaluations into Routine Clinic Visits and Care Guidelines in Children With Treated SMA Type 1
9:20Use of the Alberta Infant Motor Scale to Assess Motor Development in Infants Diagnosed by Newborn Screening and Treated With a Disease Modifying Drug
9:40Break
10:00Hip Instability Effects Motor Function (HFMSE total score) Across SMA Phenotypes
10;20Evaluating Responses to Treatment in Adults With Spinal Muscular Atrophy:  2- and 3-Year Projections
10:40Special Session:  ETHICS
11:40Lunch
PM 
1:00NEWBORN SCREENING PANEL
2:00Break
2:20Special Session:  NUTRITION
3:20Unrestricted Oral Feedings Reported by Caregivers and Affected Persons Across Severity of SMA
3:40Weight for Age in a Long-Term Natural History of Spinal Muscular Atrophy Types 2 and 3
4:00Adjourn


 

Disney's Grand Californian Hotel & Spa
1600 S. Disneyland Drive
Anaheim, CA 92802
United States
+1 (714) 635-2300

 

 

The University of Wisconsin–Madison Interprofessional Continuing Education Partnershp (ICEP) and Cure SMA gratefully acknowledge the educational grants provided by Biogen and Novartis.

POLICY ON FACULTY AND SPONSOR DISCLOSURE

It is the policy of the University of Wisconsin–Madison Interprofessional Continuing Education Partnership (ICEP) to identify, mitigate and disclose all relevant financial relationships with ineligible companies* held by the speakers/presenters, authors, planners, and other persons who may influence content of this accredited continuing education (CE). In addition, speakers, presenters, and authors must disclose any planned discussion of unlabeled/unapproved uses of drugs or devices during their presentation. For this accredited continuing education activity all relevant financial relationships have been mitigated and detailed disclosures are listed below.

*Ineligible companies are those whose primary business is producing, marketing, selling, re-selling, or distributing healthcare products used by, or on, patients. The ACCME does not consider providers of clinical services directly to patients to be ineligible companies.

CE INFORMATION FOR THE CLINICAL CARE SESSION ONLY

 

 

NAME

 

 

ROLE(S)

 

 

FINANCIAL RELATIONSHIPS DISCLOSURE

DISCUSSION OF UNLABELED/

UNAPPROVED USES OF DRUGS/DEVICES

IN PRESENTATION?

Lindsay Baker, PT

Presenter

Biogen, Inc. (Contractor)

No

Alison Ballard, RN, MSN

Planner, Content Reviewer

No relevant relationships with ineligible companies to disclose

No

Vanessa Battista, RN, MS

Planner

Novartis Gene Therapies, Inc., Biogen, Clinical Care Options (All Contractor)

No

William Bell, PharmD, MBA

Planner

No relevant relationships with ineligible companies to disclose

No

Lisa Belter, MPH

Presenter

No relevant relationships with ineligible companies to disclose

No

John Brandsema, MD

Planner, Presenter

Audentes, Scholar Rock, Astellas Pharma, NS Pharma, PTC Therapeutics, Inc., Genentech, Novartis Pharma, Pfizer, Biogen Idec, Eli Lilly and Company, Momenta Pharmaceuticals, Inc., Janssen Biotech, Inc., Sarepta Therapeutics, Inc. (All Contractor); Alexion Pharmaceuticals, Pfizer, Biogen, PTC Therapeutics, Inc., Sarepta Therapeutics, Inc., FibroGen, Astellas Pharma, Novartis, CSL Behring (All Grant)

No

Thomas Crawford, MD

Planner, Presenter

Sarepta Therapeutics, Inc., Biogen, Inc., Genentech USA, Inc., Scholar Rock (All Contractor)

No

Francesco Danilo Tiziano, MD

Presenter

No relevant relationships with ineligible companies to disclose

No

Tina Duong, MPT, PhDc

Planner, Presenter

Biogen, Novartis, Scholar Rock, Roche, Genentech (All Contractor)

No

Bakri Elsheikh, MD

Presenter

Argenx, Biogen, Medscape, Genentech (All Contractor); Biogen, Genentech (Both Grant)

No

Al Freedman, PhD

Planner

Biogen, Inc., Novartis, Genentech (All Contractor)

No

Melissa Gibbons, MS, CGS

Planner

Novartis, Biogen (Both Grant); Taysha Gene Therapies (Contractor)

No

Bo Hoon Lee, MD

Presenter

Novartis Gene Therapies, Inc., Sarepta Therapeutics, Inc., Sanofi and Genzyme US Companies (All Grant); F. Hoffmann-La Roche (Contractor)

No

Jennifer Hubbell, OTR/L

Planner, Content Reviewer

No relevant relationships with ineligible companies to disclose

No

Becky Hurst-Davis, MS, RD

Planner, Presenter

No relevant relationships with ineligible companies to disclose

No

Brian Jackson, MD, MA

Presenter

No relevant relationships with ineligible companies to disclose

No

Didu Kariyawasam, MBBS

Presenter

Biogen (Grant)

Yes

Natalie Katz, MD, PhD

Presenter

No relevant relationships with ineligible companies to disclose

No

Chamindra Konersman, MD

Planner

Genentech USA, Inc., PTC Therapeutics, Inc., Biogen, Inc., Novartis Pharma, Avidity, Sarepta Therapeutics, Inc. (All Contractor)

No

Richard Kravitz, MD

Planner

Biogen, Inc., Santhera, AveXis (All Contractor)

No

Kristin Krosschell, PT, DPT

Planner

Biogen, Genentech, ASPA Therapeutics (All Contractor)

No

Oren Kupfer, MD

Planner

No relevant relationships with ineligible companies to disclose

No

Maureen Lefton-Greif, PhD

Presenter

AtaxiaTelangiectasia Children's Project (Contractor); Royalty (Copyright)

No

Jennifer Mangers, MHA, MS

Planner

No relevant relationships with ineligible companies to disclose

No

Cathy Means, MS

Planner

No relevant relationships with ineligible companies to disclose

No

Diane Murrell, LCSW

Planner

Novartis Gene Therapies, Inc. (Contractor)

No

Leslie Nelson, PT

Planner

Scholar Rock, F. Hoffmann-La Roche, Biogen, Inc., Novartis, Genentech (All Contractor)

No

Julie Parsons, MD

Planner, Moderator

Genentech, Novartis, Biogen, Scholar Rock (All Contractor)

No

Amy Pasternak, PT, DPT, PCS

Presenter

Genentech (Contractor)

No

Samuel Rosenfeld, MD

Planner, Content Reviewer

No relevant relationships with ineligible companies to disclose

No

Mary Schroth, MD

Planner, Medical Director

No relevant relationships with ineligible companies to disclose

No

Edward Smith, MD

Planner

Novartis, Biogen, Genentech (All Contractor)

Yes

Anne Stratton, MD

Planner, Content Reviewer

No relevant relationships with ineligible companies to disclose

No

Stacey Tarrant, RD, LDN

Planner,

Presenter, Content Reviewer

No relevant relationships with ineligible companies to disclose

No

Jane Taylor, MD

Planner, Content Reviewer

No relevant relationships with ineligible companies to disclose

No

Fred Troutman, MD

Planner

No relevant relationships with ineligible companies to disclose

No

Laura Watne, MD, RD

Planner

No relevant relationships with ineligible companies to disclose

No

 

 

Discloser List CME Internal Report

Accreditation Statement

Jointly Accredited Provider LogoIn support of improving patient care, this activity has been planned and implemented by the University of Wisconsin–Madison Interprofessional Continuing Education Partnership (ICEP) and Cure SMA. The University of Wisconsin–Madison ICEP is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC) to provide continuing education for the healthcare team.

Credit Designation Statements

American Medical Association (AMA)

The University of Wisconsin-Madison ICEP designates this live activity for a maximum of 5.25 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

 

American Nurses Credentialing Center (ANCC)

The University of Wisconsin–Madison ICEP designates this live activity for a maximum of 5.25 ANCC contact hours.

 

Accreditation Council for Pharmacy Education (ACPE)

The University of Wisconsin–Madison ICEP designates this knowledge-based activity for a maximum of 5.25 hours/0.525 CEUs of CPE credit. Credit can be earned by documented attendance and by successfully completing the evaluation. Credit will be provided to NABP CPE Monitor within 60 days after the activity completion.

Universal Activity Number (UAN) JA0000358-9999-22-077-L01-P

American Psychological Association (APA)

Continuing Education (CE) credits for psychologists are provided through the co-sponsorship of the American Psychological Association (APA) Office of Continuing Education in Psychology (CEP). The APA CEP Office maintains responsibility for the content of the programs.

PARTIAL CREDIT WILL NOT BE AWARDED; IN ORDER TO CLAIM CREDIT, ATTENDANCE AT THE ENTIRE PROGRAM IS REQUIRED.
 

ASWB Approved Continuing Education (ACE) Social Work Credit

As a Jointly Accredited Organization, the University of Wisconsin–Madison ICEP is approved to offer social work continuing education by the Association of Social Work Boards (ASWB) Approved Continuing Education (ACE) program. Organizations, not individual courses, are approved under this program. State and provincial regulatory boards have the final authority to determine whether an individual course may be accepted for continuing education credit. The University of Wisconsin–Madison ICEP maintains responsibility for this course. Social workers completing this course receive 5.25 live continuing education credits.

Wisconsin Physical Therapy Association (WPTA)

This activity has been approved by the APTA Wisconsin for 5.25 credits (Approval Number 18733).  In order to claim credit, you have to attend at least 80% of the conference. The minimum number of credits you can claim is 4.25.

Wisconsin Occupational Therapy Association (WOTA)

This activity has been approved by WOTA for 5.25 credits.

 

Commission on Dietetic Registration (CDR)

This activity has been approved for 5.25 CPEU hours.

 

Continuing Education Units (CEUs)

The University of Wisconsin–Madison ICEP, as a member of the University Professional & Continuing Education Association (UPCEA), authorizes this program for .525 CEUs or 5.25 hours.

 

 

 

 

 

Available Credit

  • 5.25 ACPE Contact Hours - Pharmacist
  • 5.25 AMA PRA Category 1 Credit
  • 5.25 ANCC Contact Hours
  • 5.25 APA CE Credits
  • 5.25 CDR CPEUs
  • 5.25 Occupational Therapy (OT) CE Contact Hours
  • 5.25 Physical Therapy Contact Hours
  • 5.25 ACE Credits
  • 5.25 University of Wisconsin–Madison Continuing Education Hours
    • 5.25 Approved for AMA PRA Category 1 Credit™

Price

Cost:
$0.00
Please login or register to take this course.

Accessibility

The University of Wisconsin provides equal opportunities in employment and programming, including Title IX requirements. The University of Wisconsin fully complies with the legal requirements of the ADA and the rules and regulations thereof. If any participant in this educational activity is in need of accommodations, please notify us at help@icep.wisc.edu.