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ForwardCure SMA Clinical Care Session 2022 Conference
TARGET AUDIENCE
This activity is intended for health care providers who diagnose and care for people affected by SMA, including physicians, nurse practitioners, physician assistants and nurses, pediatric and adult specialists including neurologists, pulmonologists, rehabilitation medicine, genetics, orthopedic surgery, palliative care, physical and occupational therapists, speech and language pathologists, pharmacists, nutritionists, genetic counselors, social workers, respiratory therapists, and trainees in the above disciplines.
ACTIVITY OBJECTIVES
The learning objectives for this activity are:
- Demonstrate knowledge of multidisciplinary team roles and responsibilities in care management to optimize SMA outcomes
- Describe the existing and evolving treatment options for patients with SMA
- Describe the impact of new treatments on the SMA phenotype
- Analyze factors that affect individual nutrition plans for individuals with SMA, including tube feeding formula and oral diet recommendations, and how these recommendations are evolving with disease-modifying therapies
ELEMENTS OF COMPETENCE
This activity has been designed to change learner competence and focuses on the American Board of Medical Specialties areas of patient care and procedural skills, medical knowledge, practice-based learning and improvement, interpersonal and communication skills, professionalism, and systems-based practice. This activity also focuses on the interprofessional competencies of values/ethics for interprofessional practice, interprofessional communication, and teams/teamwork.
| AM | |
| 8:30 | Welcome and CMO Update |
| 8:45 | Update on Cure SMA Real World Evidence Data Collection |
| 9:00 | Proposal to Implement Cognitive and Language Screening Evaluations into Routine Clinic Visits and Care Guidelines in Children With Treated SMA Type 1 |
| 9:20 | Use of the Alberta Infant Motor Scale to Assess Motor Development in Infants Diagnosed by Newborn Screening and Treated With a Disease Modifying Drug |
| 9:40 | Break |
| 10:00 | Hip Instability Effects Motor Function (HFMSE total score) Across SMA Phenotypes |
| 10;20 | Evaluating Responses to Treatment in Adults With Spinal Muscular Atrophy: 2- and 3-Year Projections |
| 10:40 | Special Session: ETHICS |
| 11:40 | Lunch |
| PM | |
| 1:00 | NEWBORN SCREENING PANEL |
| 2:00 | Break |
| 2:20 | Special Session: NUTRITION |
| 3:20 | Unrestricted Oral Feedings Reported by Caregivers and Affected Persons Across Severity of SMA |
| 3:40 | Weight for Age in a Long-Term Natural History of Spinal Muscular Atrophy Types 2 and 3 |
| 4:00 | Adjourn |
The University of Wisconsin–Madison Interprofessional Continuing Education Partnershp (ICEP) and Cure SMA gratefully acknowledge the educational grants provided by Biogen and Novartis.
POLICY ON FACULTY AND SPONSOR DISCLOSURE
It is the policy of the University of Wisconsin–Madison Interprofessional Continuing Education Partnership (ICEP) to identify, mitigate and disclose all relevant financial relationships with ineligible companies* held by the speakers/presenters, authors, planners, and other persons who may influence content of this accredited continuing education (CE). In addition, speakers, presenters, and authors must disclose any planned discussion of unlabeled/unapproved uses of drugs or devices during their presentation. For this accredited continuing education activity all relevant financial relationships have been mitigated and detailed disclosures are listed below.
*Ineligible companies are those whose primary business is producing, marketing, selling, re-selling, or distributing healthcare products used by, or on, patients. The ACCME does not consider providers of clinical services directly to patients to be ineligible companies.
CE INFORMATION FOR THE CLINICAL CARE SESSION ONLY
NAME |
ROLE(S) |
FINANCIAL RELATIONSHIPS DISCLOSURE | DISCUSSION OF UNLABELED/ UNAPPROVED USES OF DRUGS/DEVICES IN PRESENTATION? |
Lindsay Baker, PT | Presenter | Biogen, Inc. (Contractor) | No |
Alison Ballard, RN, MSN | Planner, Content Reviewer | No relevant relationships with ineligible companies to disclose | No |
Vanessa Battista, RN, MS | Planner | Novartis Gene Therapies, Inc., Biogen, Clinical Care Options (All Contractor) | No |
William Bell, PharmD, MBA | Planner | No relevant relationships with ineligible companies to disclose | No |
Lisa Belter, MPH | Presenter | No relevant relationships with ineligible companies to disclose | No |
John Brandsema, MD | Planner, Presenter | Audentes, Scholar Rock, Astellas Pharma, NS Pharma, PTC Therapeutics, Inc., Genentech, Novartis Pharma, Pfizer, Biogen Idec, Eli Lilly and Company, Momenta Pharmaceuticals, Inc., Janssen Biotech, Inc., Sarepta Therapeutics, Inc. (All Contractor); Alexion Pharmaceuticals, Pfizer, Biogen, PTC Therapeutics, Inc., Sarepta Therapeutics, Inc., FibroGen, Astellas Pharma, Novartis, CSL Behring (All Grant) | No |
Thomas Crawford, MD | Planner, Presenter | Sarepta Therapeutics, Inc., Biogen, Inc., Genentech USA, Inc., Scholar Rock (All Contractor) | No |
Francesco Danilo Tiziano, MD | Presenter | No relevant relationships with ineligible companies to disclose | No |
Tina Duong, MPT, PhDc | Planner, Presenter | Biogen, Novartis, Scholar Rock, Roche, Genentech (All Contractor) | No |
Bakri Elsheikh, MD | Presenter | Argenx, Biogen, Medscape, Genentech (All Contractor); Biogen, Genentech (Both Grant) | No |
Al Freedman, PhD | Planner | Biogen, Inc., Novartis, Genentech (All Contractor) | No |
Melissa Gibbons, MS, CGS | Planner | Novartis, Biogen (Both Grant); Taysha Gene Therapies (Contractor) | No |
Bo Hoon Lee, MD | Presenter | Novartis Gene Therapies, Inc., Sarepta Therapeutics, Inc., Sanofi and Genzyme US Companies (All Grant); F. Hoffmann-La Roche (Contractor) | No |
Jennifer Hubbell, OTR/L | Planner, Content Reviewer | No relevant relationships with ineligible companies to disclose | No |
Becky Hurst-Davis, MS, RD | Planner, Presenter | No relevant relationships with ineligible companies to disclose | No |
Brian Jackson, MD, MA | Presenter | No relevant relationships with ineligible companies to disclose | No |
Didu Kariyawasam, MBBS | Presenter | Biogen (Grant) | Yes |
Natalie Katz, MD, PhD | Presenter | No relevant relationships with ineligible companies to disclose | No |
Chamindra Konersman, MD | Planner | Genentech USA, Inc., PTC Therapeutics, Inc., Biogen, Inc., Novartis Pharma, Avidity, Sarepta Therapeutics, Inc. (All Contractor) | No |
Richard Kravitz, MD | Planner | Biogen, Inc., Santhera, AveXis (All Contractor) | No |
Kristin Krosschell, PT, DPT | Planner | Biogen, Genentech, ASPA Therapeutics (All Contractor) | No |
Oren Kupfer, MD | Planner | No relevant relationships with ineligible companies to disclose | No |
Maureen Lefton-Greif, PhD | Presenter | AtaxiaTelangiectasia Children's Project (Contractor); Royalty (Copyright) | No |
Jennifer Mangers, MHA, MS | Planner | No relevant relationships with ineligible companies to disclose | No |
Cathy Means, MS | Planner | No relevant relationships with ineligible companies to disclose | No |
Diane Murrell, LCSW | Planner | Novartis Gene Therapies, Inc. (Contractor) | No |
Leslie Nelson, PT | Planner | Scholar Rock, F. Hoffmann-La Roche, Biogen, Inc., Novartis, Genentech (All Contractor) | No |
Julie Parsons, MD | Planner, Moderator | Genentech, Novartis, Biogen, Scholar Rock (All Contractor) | No |
Amy Pasternak, PT, DPT, PCS | Presenter | Genentech (Contractor) | No |
Samuel Rosenfeld, MD | Planner, Content Reviewer | No relevant relationships with ineligible companies to disclose | No |
Mary Schroth, MD | Planner, Medical Director | No relevant relationships with ineligible companies to disclose | No |
Edward Smith, MD | Planner | Novartis, Biogen, Genentech (All Contractor) | Yes |
Anne Stratton, MD | Planner, Content Reviewer | No relevant relationships with ineligible companies to disclose | No |
Stacey Tarrant, RD, LDN | Planner, Presenter, Content Reviewer | No relevant relationships with ineligible companies to disclose | No |
Jane Taylor, MD | Planner, Content Reviewer | No relevant relationships with ineligible companies to disclose | No |
Fred Troutman, MD | Planner | No relevant relationships with ineligible companies to disclose | No |
Laura Watne, MD, RD | Planner | No relevant relationships with ineligible companies to disclose | No |
Accreditation Statement
 | In support of improving patient care, this activity has been planned and implemented by the University of Wisconsin–Madison Interprofessional Continuing Education Partnership (ICEP) and Cure SMA. The University of Wisconsin–Madison ICEP is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC) to provide continuing education for the healthcare team. |
Credit Designation Statements | American Medical Association (AMA)The University of Wisconsin-Madison ICEP designates this live activity for a maximum of 5.25 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity. |
| American Nurses Credentialing Center (ANCC)The University of Wisconsin–Madison ICEP designates this live activity for a maximum of 5.25 ANCC contact hours. |
Accreditation Council for Pharmacy Education (ACPE)The University of Wisconsin–Madison ICEP designates this knowledge-based activity for a maximum of 5.25 hours/0.525 CEUs of CPE credit. Credit can be earned by documented attendance and by successfully completing the evaluation. Credit will be provided to NABP CPE Monitor within 60 days after the activity completion. Universal Activity Number (UAN) JA0000358-9999-22-077-L01-P | |
 | American Psychological Association (APA)Continuing Education (CE) credits for psychologists are provided through the co-sponsorship of the American Psychological Association (APA) Office of Continuing Education in Psychology (CEP). The APA CEP Office maintains responsibility for the content of the programs. PARTIAL CREDIT WILL NOT BE AWARDED; IN ORDER TO CLAIM CREDIT, ATTENDANCE AT THE ENTIRE PROGRAM IS REQUIRED. |
ASWB Approved Continuing Education (ACE) Social Work CreditAs a Jointly Accredited Organization, the University of Wisconsin–Madison ICEP is approved to offer social work continuing education by the Association of Social Work Boards (ASWB) Approved Continuing Education (ACE) program. Organizations, not individual courses, are approved under this program. State and provincial regulatory boards have the final authority to determine whether an individual course may be accepted for continuing education credit. The University of Wisconsin–Madison ICEP maintains responsibility for this course. Social workers completing this course receive 5.25 live continuing education credits. | |
 | Wisconsin Physical Therapy Association (WPTA)This activity has been approved by the APTA Wisconsin for 5.25 credits (Approval Number 18733). In order to claim credit, you have to attend at least 80% of the conference. The minimum number of credits you can claim is 4.25. |
 | Wisconsin Occupational Therapy Association (WOTA)This activity has been approved by WOTA for 5.25 credits. |
Commission on Dietetic Registration (CDR)This activity has been approved for 5.25 CPEU hours. | |
| Continuing Education Units (CEUs)The University of Wisconsin–Madison ICEP, as a member of the University Professional & Continuing Education Association (UPCEA), authorizes this program for .525 CEUs or 5.25 hours. |
Available Credit
- 5.25 ACPE Contact Hours - Pharmacist
- 5.25 AMA PRA Category 1 Credit™
- 5.25 ANCC Contact Hours
- 5.25 APA CE Credits
- 5.25 CDR CPEUs
- 5.25 Occupational Therapy (OT) CE Contact Hours
- 5.25 Physical Therapy Contact Hours
- 5.25 University of Wisconsin–Madison Continuing Education Hours
- 5.25 Approved for AMA PRA Category 1 Credit™
Accessibility
The University of Wisconsin provides equal opportunities in employment and programming, including Title IX requirements. The University of Wisconsin fully complies with the legal requirements of the ADA and the rules and regulations thereof. If any participant in this educational activity is in need of accommodations, please notify us at help@icep.wisc.edu.