2023 Down Syndrome Medical Interest Group-USA (DSMIG-USA®) Annual Symposium
Jointly Provided by
- The Down Syndrome Medical Interest Group-USA (DSMIG-USA®)
- University of Wisconsin–Madison Interprofessional Continuing Education Partnership (ICEP)
Format
The symposium will be held in-person only.
Location
Ritz-Carlton Orlando, Grande Lakes
4012 Central Florida Parkway
Orlando, Florida 32837
https://www.ritzcarlton.com/en/hotels/florida/orlando
Hotel Rooms
A limited number of hotel rooms are available at the Ritz Carlton; please visit https://book.passkey.com/go/NDSCC2023RC to make housing arrangements. If you need to enter a passcode once the webpage has opened, please enter NDSCRCA07921G91KFT.
Description and Intended Audience
The Down Syndrome Medical Interest Group-USA (DSMIG-USA®) Annual Symposium provides an interdisciplinary forum for sharing of knowledge and experiences related to the clinical care of children and adults with Down syndrome, clinical research related to Down syndrome, and the development of Down syndrome clinics. The intended audience is DSMIG-USA members and other health professionals working and caring for people with Down syndrome including physicians, research scientists, nurses, nurse practitioners, Down syndrome clinic coordinators, psychologists, dietitians, occupational therapists, physical therapists, speech-language pathologists, social workers, and genetic counselors. Residents and trainees are also welcome to attend.
Learning Objectives
As a result of participation in this educational activity, members of the healthcare team will:
- Identify best practice management strategies for individuals who have Down syndrome and their caregivers
- Recognize and discuss trends in care for people with Down syndrome with interdisciplinary colleagues
- Formulate best practice care plans with interdisciplinary colleagues to incorporate into their practice
Elements of Competence
This continuing education activity has been designed to change learner competence and focuses on the American Board of Medical Specialties areas of medical knowledge, patient care and procedural skills, and practice based learning and improvement. This activity also focuses on the interprofessional competencies of interprofessional communication, roles/responsibilities, and teams/teamwork.
Symposium Fees
Group Discount:
$25 off per registration when two or more register from the same organization! Request Group Discount
This coupon code is only eligible with member and non-member rates (it cannot be used with the student/trainee rate).
Early Bird Fees (on or before June 1, 2023):
- Members of DSMIG-USA® in good standing: $299
- Non-members: $349
- Students/Trainees: $199
After June 1, 2023:
- Members of DSMIG-USA® in good standing: $349
- Non-members: $399
- Students/Trainees: $199
On-Site Registration Fee:
$399 (for everyone)
Welcome Reception:
$30
Saturday Workgroups:
$25
Cancellation and Refund Policy
Requests for cancellation must be submitted in writing to [email protected]. Cancellation requests received at least 96 hours prior to the symposium will allow a full refund except for the nonrefundable processing fee of $50. No refunds will be made for cancellations received less than 96 hours prior to the activity start date.
For Further Information
For symposium information email Emilie Perkins at [email protected]. For registration assistance, email [email protected].
Friday, July 21, 2023
ALL TIMES ARE EASTERN DAYLIGHT TIME
AM | |
8:00-8:10 | Welcome and Announcements, Katie Frank, PhD, OTR/L |
8:15-9:15 | Assisting with Advance Directives For/With People with Down Syndrome, Brian Chicoine, MD; Mary Stephens, MD, MPH, FAAFP, FAADM; Jennifer Jett, MD |
9:20-10:20 | Trauma-Informed Approach to the Care of Patients and Families, Kimberly Canter, PhD; Gaby Vega, MS |
10:20-10:30 | Break |
10:30-11:30 | An Overview of Neurologic Conditions in Down Syndrome, Nicole Baumer, MEd, MD; Meghan O'Neill, MD, FAAP |
11:30-12:30 | Lunch |
PM | |
12:35-12:45 | Update from NDSC, Nicole Baumer, MEd, MD; Jordan Kough |
12:50-1:50 | Immune Dysregulation in Down Syndrome: Advances in Mechanistic Understanding, Diagnosis, and Treatment Through the INCLUDE Project, Joaquin Espinosa, PhD; Melissa Parisi, MD, PhD; Bernard Khor, MD, PhD; Gustavo Nino, MD; Jonathan Santoro, MD; Marisa Stahl, MD |
1:55-2:55 | Project ECHO and DSMIG USA, Brian Chicoine, MD; Mary Pipan, MD |
3:00-3:10 | Break |
3:10-4:10 | A Multidisciplinary Tiered Model of OSA Treatment in Children, Kevin Gipson, MD, MS; Gregory Young, PhD, LABA, BCBA |
4:15-5:00 | Practice Changing Articles - Update in the Medical Literature, Kishore Vellody, MD; Peter Bulova, MD |
5:05-5:10 | Closing Announcements |
5:10-6:10 | Poster Presentations |
Additional Activities
Thursday, July 20, 2023
The Thursday activities are not accredited for continuing education credit.
3:00-4:30 PM Therapy Workgroup; Leader: Helen Milligan, PT, MPT
The Therapy Workgroup is a community within DSMIG-USA whose members are therapists and/or educators in the areas of Occupational Therapy, Physical Therapy, or Speech Therapy. The group has an interest in advancing knowledge regarding best practices as it relates to therapy when treating those with Down syndrome considering commonly seen issues which may respond to therapy interventions at various ages.
3:00-4:30 PM Clinic Support Committee; Leader: Terri Couwenhoven, MS
This meeting, previously for Clinic Coordinators only, is now for any Down syndrome clinic staff member (new or seasoned) interested in receiving guidance and/or support for clinic development, management, or operations. During this meeting, attendees will learn about updates on the clinic support section of the DSMIG website, and then share needs and challenges, program ideas, and success stories.
4:45-5:45 PM Live Poster Session
Take some time to listen to live presentations of posters depicting impactful information on research and institutional programs.
5:50-8:00 PM Member Meeting
Join your peers as we gather to celebrate the important programs that impacted DSMIG-USA since last year's meeting. Reports will be shared from committees, workgroups, and officers.
7:00-8:30 PM Welcome Reception
Don't miss the chance to connect and engage with DSMIG members after 4 years apart! Enjoy an evening of delicious hors d'oeuvres and refreshing drinks as you reconnect with fellow attendees in a relaxed and informal atmosphere.
Saturday, July 22, 2023
The Saturday workgroups are offering continuing education credit.
7:30-9:30 AM Adolescent and Adult Health Workgroup; Leaders: George Capone, MD, Mary Stephens, MD, MPH, FAAFP, FAADM
This workgroup will provide an update on the Adult Healthcare Projects currently underway (medical literature reviews, MH/Regression, dementia screening, weight-lifestyle management, and CME activities). Group discussion, Q&A are planned.
9:45-11:45 AM DS-ASD Workgroup; Leaders: Lina Patel, PsyD; Noemi Spinazzi, MD; Margaret Froehlke, RN, BSN
This workgroup will include discussions on what has been learned about DS-ASD in the past year, how to apply that learning to improving the quality of care for individuals with co-occurring Down syndrome and autism spectrum disorder, and what needs to be learned in the next year to advance our understanding of how best to serve the needs of these individuals and their families. A summary and updates regarding ongoing projects will be given in addition to applicable information for use within a clinical setting.
Hotel Rooms
A limited number of hotel rooms are available at the Ritz Carlton; please visit https://book.passkey.com/go/NDSCC2023RC to make housing arrangements. If you need to enter a passcode once the webpage has opened, please enter NDSCRCA07921G91KFT.
Symposium Presenters
Nicole Baumer, MD, MEd, Director, Boston Children's Hospital Down Syndrome Program
Peter Bulova, MD, Associate Professor of General Internal Medicine; Co-Director, Magee Center for Women with Disabilities; Director, University of Pittsburgh Adult Down Syndrome Center; Director, The Department of Medicine Internal Scholars Track
Kimberly Canter, PhD, Research Scientist and Pediatric Psychologist, Nemours Children’s Hospital
George Capone, MD, Director, Kennedy Krieger Institute's Down Syndrome Clinic and Research Center
Brian Chicoine, MD, Medical Director, Advocate Medical Group Adult Down Syndrome Center; Faculty, Lutheran General Hospital Family Medicine Residency
Terri Couwenhoven, MS, Clinic Coordinator, Children's Hospital of Wisconsin-Down Syndrome Clinic
Joaquin Espinosa, PhD, Executive Director, Linda Crnic Institute for Down Syndrome
Katie Frank, PhD, OTR/L, Annual Symposium Committee Co-Chair; Occupational Therapist III, Advocate Medical Group Adult Down Syndrome Center
Margaret Froehlke, RN, BSN, Secretary of the Board of Directors at The Down Syndrome-Autism Connection
Kevin Gipson, MD, MS, Pediatric Pulmonologist and Sleep Medicine Physician, Massachusetts General Hospital
Jennifer Jett, MD,
Bernard Khor, MD, PhD,
Jordan Kough, Executive Director, National Down Syndrome Congress
Helen Milligan, PT, MPT, Physical Therapist, Physical Therapy Department, Children's Hospital of Philadelphia
Gustavo Nino, MD,
Meghan O'Neill, MD, FAAP, Attending Physician, Developmental and Behavioral Pediatrics; Attending Physician, Neurology, Lurie Children’s Hospital; Assistant Professor of Pediatrics (Developmental Behavioral Pediatrics, Child Neurology), Northwestern University Feinberg School of Medicine
Melissa Parisi, MD, PhD, National Institutes of Health (NIH)
Lina Patel, PsyD, Director of Psychology at the Sie Center for Down Syndrome, Children's Hospital Colorado; Assistant Professor, University of Colorado School of Medicine
Mary Pipan, MD, Clinical Director, Trisomy 21 Program; Attending Physician, Developmental Behavioral Pediatrics, The Children's Hospital of Philadelphia
Jonathan Santoro, MD,
Noemi Spinazzi, MD, Medical Director, Down Syndrome Clinic at UCSF Benoiff Children's Hospital Oakland; Assistant Clinical Professor, UCSF School of Medicine
Marisa Stahl, MD,
Mary Stephens, MD, MPH, FAAFP, FAADM, Medical Director, Jefferson Continuing Care Program (JCCP), Associate Professor, Family and Community Medicine
Gaby Vega, MS, Research Specialist, Center for Pediatric Traumatic Stress Nemours Children’s Hospital
Kishore Vellody, MD, Professor of Pediatrics; Medical Director of Down Syndrome Center of Pennsylvania; University of Pittsburgh School of Medicine
Gregory Young, PhD, LABA, BCBA, Cognitive Behavioral/Behavioral Psychologist, LifeStance Health
Symposium Planning Committee
Nicole Baumer, MD, MEd, Director, Boston Children's Hospital Down Syndrome Program
Gabriela Eguiarte, MD, Pediatrician, Angeles Pedregal Hospital, Mexico
Katie Frank, PhD, OTR/L, Annual Symposium Committee Co-Chair; Occupational Therapist III, Advocate Medical Group Adult Down Syndrome Center
Amy Lyle, MSSW, Clinic Coordinator, Waisman Down Syndrome Clinic, University of Wisconsin-Madison
Andrew McCormick, MD, Director, Healthy Transitions Program, Down Syndrome Center of Western Pennsylvania; Associate Professor of Pediatrics, University of Pittsburgh School of Medicine
Lina Patel, PsyD, Director of Psychology at the Sie Center for Down Syndrome, Children's Hospital Colorado; Assistant Professor, University of Colorado School of Medicine
Emilie Perkins, Director of Client and Conference Services, Raybourn Group International
Moya Peterson, PhD, APRN, FNP-BC, Adults with Down Syndrome Specialty Clinic, Department of Family Medicine and Community Health, University of Kansas Medical Center
Noemi Spinazzi, MD, Medical Director, Down Syndrome Clinic at UCSF Benoiff Children's Hospital Oakland; Assistant Clinical Professor, UCSF School of Medicine
Maria Stanley, MD, FAAP, Annual Symposium Committee Co-Chair; Clinical Professor of Pediatrics, University of Wisconsin School of Medicine and Public Health; Medical Director, Waisman Center; Director, Down Syndrome Clinic
Policy on Faculty and Sponsor Disclosure
It is the policy of the University of Wisconsin–Madison Interprofessional Continuing Education Partnership (ICEP) to identify, mitigate, and disclose all relevant financial relationships with ineligible companies* held by the speakers/presenters, authors, planners, and other persons who may influence the content of this accredited continuing education (CE). In addition, speakers/presenters and authors must disclose any planned discussion of unlabeled/unapproved uses of drugs or devices during their presentation(s). For this accredited continuing education activity all relevant financial relationships have been mitigated and detailed disclosures are listed below.
*Ineligible companies are those whose primary business is producing, marketing, selling, re-selling, or distributing healthcare products used by, or on, patients. The ACCME does not consider providers of clinical services directly to patients to be ineligible companies.
NAME | ROLE(S) | FINANCIAL RELATIONSHIPS DISCLOSURE | DISCUSSION OF UNLABELED/UNAPPROVED USES OF DRUGS/DEVICES IN PRESENTATION? |
Nicole Baumer, MD, MEd | Committee Member, Speaker | No relevant relationships with ineligible companies to disclose | Yes |
Peter Bulova, MD | Speaker | No relevant relationships with ineligible companies to disclose | No |
Kimberly Canter, PhD | Speaker | No relevant relationships with ineligible companies to disclose | No |
George Capone, MD | Speaker | LuMind Foundation (Grant) | No |
Brian Chicoine, MD | Speaker | No relevant relationships with ineligible companies to disclose | No |
Gabriela Eguiarte, MD | Committee Member | No relevant relationships with ineligible companies to disclose | No |
Joaquin Espinosa, PhD | Speaker | No relevant relationships with ineligible companies to disclose | No |
Katie Frank, PhD, OTR/L | Committee Member, Speaker, Co-Course Director, Content Reviewer | No relevant relationships with ineligible companies to disclose | No |
Margaret Froehlke, RN, BSN | Speaker | No relevant relationships with ineligible companies to disclose | No |
Kevin Gipson, MD, MS | Speaker | No relevant relationships with ineligible companies to disclose | No |
Jennifer Jett, MD | Speaker | No relevant relationships with ineligible companies to disclose | No |
Bernard Khor, MD, PhD | Speaker | Fresh Tracks, Teraimmune, Pfizer (All Grant) | No |
Amy Lyle, MSSW | Committee Member | No relevant relationships with ineligible companies to disclose | No |
Andrew McCormick, MD | Committee Member | No relevant relationships with ineligible companies to disclose | No |
Cathy Means | Planner | No relevant relationships with ineligible companies to disclose | No |
Gustavo Nino, MD | Speaker | No relevant relationships with ineligible companies to disclose | No |
Meghan O'Neill, MD, FAAP | Speaker | No relevant relationships with ineligible companies to disclose | No |
Melissa Parisi, MD, PhD | Speaker | KBS Real Estate Investment Trust (Other Securities); J.P. Morgan Chase & Co., and Microsoft (Both Stock) | Yes |
Lina Patel, PsyD | Committee Member, Speaker | No relevant relationships with ineligible companies to disclose | No |
Emilie Perkins | Committee Member | No relevant relationships with ineligible companies to disclose | No |
Moya Peterson, PhD, APRN, FNP-BC | Committee Member | No relevant relationships with ineligible companies to disclose | No |
Mary Pipan, MD | Speaker | No relevant relationships with ineligible companies to disclose | No |
Jonathan Santoro, MD | Speaker | No relevant relationships with ineligible companies to disclose | No |
Noemi Spinazzi, MD | Committee Member, Speaker | No relevant relationships with ineligible companies to disclose | No |
Marisa Stahl, MD | Speaker | Takeda Pharmaceutical Company, Pfizer (Both Contractor) | No |
Maria Stanley, MD, FAAP | Committee Member, Co-Course Director | No relevant relationships with ineligible companies to disclose | No |
Mary Stephens, MD, MPH, FAAFP, FAADM | Speaker | No relevant relationships with ineligible companies to disclose | No |
Gabriela Vega, MS | Speaker | No relevant relationships with ineligible companies to disclose | No |
Kishore Vellody, MD | Speaker | No relevant relationships with ineligible companies to disclose | No |
Gregory Young, PhD, LABA, BCBA | Speaker | No relevant relationships with ineligible companies to disclose | No |
Accreditation Statement
![]() | In support of improving patient care, this activity has been planned and implemented by the University of Wisconsin–Madison Interprofessional Continuing Education Partnership (ICEP) and the Down Syndrome Medical Interest Group-USA. The University of Wisconsin–Madison ICEP is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC) to provide continuing education for the healthcare team. |
Credit Designation Statements | |
American Medical Association | The University of Wisconsin–Madison ICEP designates this live activity for a maximum of 10.75 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity. |
![]() | American Board of Pediatrics (Maintenance of Certification-MOC)Successful completion of this CME activity, which includes participation in the evaluation component, enables the learner to earn up to 10.75 MOC points in the American Board of Pediatrics' (ABP) Maintenance of Certification (MOC) program. It is the CME activity provider's responsibility to submit learner completion information to ACCME for the purpose of granting ABP MOC credit. By completing the requirements for this activity, the learner gives UW-Madison ICEP permission to share completion data with the ACCME and the certifying board(s). |
![]() | American Board of Internal Medicine (Maintenance of Certification-MOC)Successful completion of this CME activity, which includes participation in the evaluation component, enables the participant to earn up to 10.75 MOC points in the American Board of Internal Medicine's (ABIM) Maintenance of Certification (MOC) program. It is the CME activity provider's responsibility to submit participant completion information to ACCME for the purpose of granting ABIM MOC credit. By completing the requirements for this activity, the learner gives UW-Madison ICEP permission to share completion data with the ACCME and the certifying board(s). |
![]() | Continuing Education (CE) credits for psychologists are provided through the co-sponsorship of the American Psychological Association (APA) Office of Continuing Education in Psychology (CEP). The APA CEP Office maintains responsibility for the content of the programs. |
Association of Social Work Boards (ASWB) | As a Jointly Accredited Organization, the University of Wisconsin–Madison ICEP is approved to offer social work continuing education by the Association of Social Work Boards (ASWB) Approved Continuing Education (ACE) program. Organizations, not individual courses, are approved under this program. Regulatory boards are the final authority on courses accepted for continuing education credit. Social workers completing this course receive 10.75 general, live continuing education credits. |
American Nurses Credentialing Center (ANCC) | The University of Wisconsin–Madison ICEP designates this live activity for a maximum of 10.75 ANCC contact hours. |
Continuing Education Units (CEUs) | The University of Wisconsin–Madison ICEP, as a member of the University Professional & Continuing Education Association (UPCEA), authorizes this program for 1.075 CEUs or 10.75 hours. |
Available Credit
- 10.75 MOC: ABIM Medical Knowledge Points (Part II)
- 10.75 MOC: ABP Lifelong Learning Points (Part II)
- 10.75 AMA PRA Category 1 Credit™
- 10.75 ANCC Contact Hours
- 10.75 APA CE Credits
- 10.75 University of Wisconsin–Madison Continuing Education Hours
- 10.75 Approved for AMA PRA Category 1 Credit™
How to Register
Select any additional options and click "Add to cart."
Before checkout, you will have the option to add a coupon code(s) to reduce the cost to the prices below. Refunds will not be given for the difference in price if applicable coupons are not used during registration.
Be sure to make note of (or highlight and right-click>copy) the correct coupon code before you click "Add to cart" so you can add/paste it in the Coupon Code field.
Once added, click "Apply coupon"
Click 'Checkout" and follow the prompts to complete your order.
Registration for this activity can only be completed through the ICEP Learning Portal. Attendee registrations made through any other sites cannot be honored. UW-Madison ICEP is not able to refund fees paid through unaffiliated registration sites, such as eMedEvents.com, MedConfWorld.com, EventEgg.com, and 10times.com. Please report any unauthorized websites or solicitations for registrations to [email protected].
Symposium Fees
Group Discount:
$25 off per registration when two or more register from the same organization! Request Group Discount
This coupon code is only eligible with member and non-member rates (it cannot be used with the student/trainee rate).
Early Bird Fees (on or before June 1, 2023):
- Members of DSMIG-USA® in good standing: $299 - email Emilie Perkins ([email protected]) for coupon code
- Non-members: $349 - coupon code DSXEB23
- Students/Trainees: $199 - coupon code DSS23
After June 1, 2023:
- Members of DSMIG-USA® in good standing: $349 - email Emilie Perkins ([email protected]) for coupon code
- Non-members: $399
- Students/Trainees: $199 - coupon code DSS23
On-Site Registration Fee:
$399 (for everyone)
Welcome Reception:
$30
Saturday Workgroups:
$25
Cancellation and Refund Policy
Requests for cancellation must be submitted in writing to [email protected]. Cancellation requests received at least 96 hours prior to the symposium will allow a full refund except for the nonrefundable processing fee of $50. No refunds will be made for cancellations received less than 96 hours prior to the activity start date.
Accessibility
The University of Wisconsin provides equal opportunities in employment and programming, including Title IX requirements. The University of Wisconsin fully complies with the legal requirements of the ADA and the rules and regulations thereof. If any participant in this educational activity is in need of accommodations, please notify us at [email protected]
For Further Information
For symposium information email Emilie Perkins at [email protected]. For registration assistance, email [email protected].
Program Changes
Emergency situations occasionally occur and may necessitate topic or speaker changes. The University of Wisconsin School of Medicine and Public Health and the University of Wisconsin–Madison ICEP reserve the right to alter or substitute a topic or speaker without prior notification.