2023 Down Syndrome Medical Interest Group-USA (DSMIG-USA®) Annual Symposium

Orlando, FL US
July 20, 2023 to July 22, 2023

Jointly Provided by

  • The Down Syndrome Medical Interest Group-USA (DSMIG-USA®)
  • University of Wisconsin–Madison Interprofessional Continuing Education Partnership (ICEP)

Format

The symposium will be held in-person only.

Location

Ritz-Carlton Orlando, Grande Lakes
4012  Central Florida Parkway
Orlando, Florida 32837
https://www.ritzcarlton.com/en/hotels/florida/orlando

Hotel Rooms

A limited number of hotel rooms are available at the Ritz Carlton; please visit https://book.passkey.com/go/NDSCC2023RC to make housing arrangements. If you need to enter a passcode once the webpage has opened, please enter NDSCRCA07921G91KFT.

Description and Intended Audience

The Down Syndrome Medical Interest Group-USA (DSMIG-USA®) Annual Symposium provides an interdisciplinary forum for sharing of knowledge and experiences related to the clinical care of children and adults with Down syndrome, clinical research related to Down syndrome, and the development of Down syndrome clinics. The intended audience is DSMIG-USA members and other health professionals working and caring for people with Down syndrome including physicians, research scientists, nurses, nurse practitioners, Down syndrome clinic coordinators, psychologists, dietitians, occupational therapists, physical therapists, speech-language pathologists, social workers, and genetic counselors. Residents and trainees are also welcome to attend.

Learning Objectives

As a result of participation in this educational activity, members of the healthcare team will:

  • Identify best practice management strategies for individuals who have Down syndrome and their caregivers
  • Recognize and discuss trends in care for people with Down syndrome with interdisciplinary colleagues
  • Formulate best practice care plans with interdisciplinary colleagues to incorporate into their practice

Elements of Competence

This continuing education activity has been designed to change learner competence and focuses on the American Board of Medical Specialties areas of medical knowledge, patient care and procedural skills, and practice based learning and improvement. This activity also focuses on the interprofessional competencies of interprofessional communication, roles/responsibilities, and teams/teamwork.

Symposium Fees

Group Discount:

$25 off per registration when two or more register from the same organization! Request Group Discount
This coupon code is only eligible with member and non-member rates (it cannot be used with the student/trainee rate). 

Early Bird Fees (on or before June 1, 2023):

  • Members of DSMIG-USA® in good standing: $299
  • Non-members: $349
  • Students/Trainees: $199

After June 1, 2023:

  • Members of DSMIG-USA® in good standing: $349
  • Non-members: $399
  • Students/Trainees: $199

On-Site Registration Fee:

  • $399 (for everyone)

Welcome Reception:

  • $30

Saturday Workgroups:

  • $25

Cancellation and Refund Policy

Requests for cancellation must be submitted in writing to help@icep.wisc.edu. Cancellation requests received at least 96 hours prior to the symposium will allow a full refund except for the nonrefundable processing fee of $50. No refunds will be made for cancellations received less than 96 hours prior to the activity start date.

For Further Information

For symposium information email Emilie Perkins at eperkins@raybourn.com. For registration assistance, email help@icep.wisc.edu

 

Course summary
Available credit: 
  • 10.75 MOC: ABIM Medical Knowledge Points (Part II)
  • 10.75 MOC: ABP Lifelong Learning Points (Part II)
  • 10.75 AMA PRA Category 1 Credit
  • 10.75 ANCC Contact Hours
  • 10.75 APA CE Credits
  • 10.75 ACE Credits
  • 10.75 University of Wisconsin–Madison Continuing Education Hours
    • 10.75 Approved for AMA PRA Category 1 Credit™
Registration opens: 
03/30/2023
Course expires: 
09/05/2023
Event starts: 
07/20/2023 - 2:00pm CDT
Event ends: 
07/22/2023 - 10:45am CDT
Cost:
$399.00
Rating: 
0

Friday, July 21, 2023

 

ALL TIMES ARE EASTERN DAYLIGHT TIME

AM 
8:00-8:10Welcome and Announcements, Katie Frank, PhD, OTR/L
8:15-9:15Assisting with Advance Directives For/With People with Down Syndrome, Brian Chicoine, MD; Mary Stephens, MD, MPH, FAAFP, FAADM; Jennifer Jett, MD
9:20-10:20Trauma-Informed Approach to the Care of Patients and Families, Kimberly Canter, PhD; Gaby Vega, MS
10:20-10:30Break
10:30-11:30An Overview of Neurologic Conditions in Down Syndrome, Nicole Baumer, MEd, MD; Meghan O'Neill, MD, FAAP
11:30-12:30Lunch
PM 
12:35-12:45Update from NDSC, Nicole Baumer, MEd, MD; Jordan Kough
12:50-1:50Immune Dysregulation in Down Syndrome: Advances in Mechanistic Understanding, Diagnosis, and Treatment Through the INCLUDE Project, Joaquin Espinosa, PhD; Melissa Parisi, MD, PhD; Bernard Khor, MD, PhD; Gustavo Nino, MD; Jonathan Santoro, MD; Marisa Stahl, MD
1:55-2:55Project ECHO and DSMIG USA, Brian Chicoine, MD; Mary Pipan, MD
3:00-3:10Break
3:10-4:10A Multidisciplinary Tiered Model of OSA Treatment in Children, Kevin Gipson, MD, MS; Gregory Young, PhD, LABA, BCBA
4:15-5:00Practice Changing Articles - Update in the Medical Literature, Kishore Vellody, MD; Peter Bulova, MD
5:05-5:10Closing Announcements
5:10-6:10Poster Presentations

Additional Activities

Thursday, July 20, 2023

The Thursday activities are not accredited for continuing education credit.

3:00-4:30 PM Therapy Workgroup; Leader: Helen Milligan, PT, MPT

The Therapy Workgroup is a community within DSMIG-USA whose members are therapists and/or educators in the areas of Occupational Therapy, Physical Therapy, or Speech Therapy. The group has an interest in advancing knowledge regarding best practices as it relates to therapy when treating those with Down syndrome considering commonly seen issues which may respond to therapy interventions at various ages.

3:00-4:30 PM Clinic Support Committee; Leader: Terri Couwenhoven, MS 

This meeting, previously for Clinic Coordinators only, is now for any Down syndrome clinic staff member (new or seasoned) interested in receiving guidance and/or support for clinic development, management, or operations. During this meeting, attendees will learn about updates on the clinic support section of the DSMIG website, and then share needs and challenges, program ideas, and success stories.

4:45-5:45 PM Live Poster Session

Take some time to listen to live presentations of posters depicting impactful information  on research and institutional programs.

5:50-8:00 PM Member Meeting

Join your peers as we gather to celebrate the important programs that impacted DSMIG-USA since last year's meeting. Reports will be shared from committees, workgroups, and officers. 

7:00-8:30 PM Welcome Reception

Don't miss the chance to connect and engage with DSMIG members after 4 years apart! Enjoy an evening of delicious hors d'oeuvres and refreshing drinks as you reconnect with fellow attendees in a relaxed and informal atmosphere.

Saturday, July 22, 2023

The Saturday workgroups are offering continuing education credit.

7:30-9:30 AM Adolescent and Adult Health Workgroup; Leaders: George Capone, MD, Mary Stephens, MD, MPH, FAAFP, FAADM

This workgroup will provide an update on the Adult Healthcare Projects currently underway (medical literature reviews, MH/Regression, dementia screening, weight-lifestyle management, and CME activities). Group discussion, Q&A are planned.

9:45-11:45 AM DS-ASD Workgroup; Leaders: Lina Patel, PsyD; Noemi Spinazzi, MD; Margaret Froehlke, RN, BSN

This workgroup will include discussions on what has been learned about DS-ASD in the past year, how to apply that learning to improving the quality of care for individuals with co-occurring Down syndrome and autism spectrum disorder, and what needs to be learned in the next year to advance our understanding of how best to serve the needs of these individuals and their families. A summary and updates regarding ongoing projects will be given in addition to applicable information for use within a clinical setting. 

Ritz-Carlton Orlando, Grande Lakes
4012 Central Florida Parkway
Orlando, FL 32837
United States
+1 (407) 206-2400

Hotel Rooms

A limited number of hotel rooms are available at the Ritz Carlton; please visit https://book.passkey.com/go/NDSCC2023RC to make housing arrangements. If you need to enter a passcode once the webpage has opened, please enter NDSCRCA07921G91KFT.

 

Symposium Presenters

Nicole Baumer, MD, MEd, Director, Boston Children's Hospital Down Syndrome Program

Peter Bulova, MD, Associate Professor of General Internal Medicine; Co-Director, Magee Center for Women with Disabilities; Director, University of Pittsburgh Adult Down Syndrome Center; Director, The Department of Medicine Internal Scholars Track

Kimberly Canter, PhD, Research Scientist and Pediatric Psychologist, Nemours Children’s Hospital

George Capone, MD, Director, Kennedy Krieger Institute's Down Syndrome Clinic and Research Center

Brian Chicoine, MD, Medical Director, Advocate Medical Group Adult Down Syndrome Center; Faculty, Lutheran General Hospital Family Medicine Residency

Terri Couwenhoven, MS, Clinic Coordinator, Children's Hospital of Wisconsin-Down Syndrome Clinic

Joaquin Espinosa, PhD, Executive Director, Linda Crnic Institute for Down Syndrome

Katie Frank, PhD, OTR/L, Annual Symposium Committee Co-Chair; Occupational Therapist III, Advocate Medical Group Adult Down Syndrome Center

Margaret Froehlke, RN, BSN, Secretary of the Board of Directors at The Down Syndrome-Autism Connection

Kevin Gipson, MD, MS, Pediatric Pulmonologist and Sleep Medicine Physician, Massachusetts General Hospital

Jennifer Jett, MD,

Bernard Khor, MD, PhD,

Jordan Kough, Executive Director, National Down Syndrome Congress

Helen Milligan, PT, MPT, Physical Therapist, Physical Therapy Department, Children's Hospital of Philadelphia

Gustavo Nino, MD,

Meghan O'Neill, MD, FAAP, Attending Physician, Developmental and Behavioral Pediatrics; Attending Physician, Neurology, Lurie Children’s Hospital; Assistant Professor of Pediatrics (Developmental Behavioral Pediatrics, Child Neurology), Northwestern University Feinberg School of Medicine

Melissa Parisi, MD, PhD, National Institutes of Health (NIH)

Lina Patel, PsyD, Director of Psychology at the Sie Center for Down Syndrome, Children's Hospital Colorado; Assistant Professor, University of Colorado School of Medicine

Mary Pipan, MD, Clinical Director, Trisomy 21 Program; Attending Physician, Developmental Behavioral Pediatrics, The Children's Hospital of Philadelphia

Jonathan Santoro, MD,

Noemi Spinazzi, MD, Medical Director, Down Syndrome Clinic at UCSF Benoiff Children's Hospital Oakland; Assistant Clinical Professor, UCSF School of Medicine

Marisa Stahl, MD,

Mary Stephens, MD, MPH, FAAFP, FAADM, Medical Director, Jefferson Continuing Care Program (JCCP), Associate Professor, Family and Community Medicine

Gaby Vega, MS, Research Specialist, Center for Pediatric Traumatic Stress Nemours Children’s Hospital

Kishore Vellody, MD, Professor of Pediatrics; Medical Director of Down Syndrome Center of Pennsylvania; University of Pittsburgh School of Medicine

Gregory Young, PhD, LABA, BCBA, Cognitive Behavioral/Behavioral Psychologist, LifeStance Health

Symposium Planning Committee

Nicole Baumer, MD, MEd, Director, Boston Children's Hospital Down Syndrome Program

Gabriela Eguiarte, MD, Pediatrician, Angeles Pedregal Hospital, Mexico

Katie Frank, PhD, OTR/L, Annual Symposium Committee Co-Chair; Occupational Therapist III, Advocate Medical Group Adult Down Syndrome Center

Amy Lyle, MSSW, Clinic Coordinator, Waisman Down Syndrome Clinic, University of Wisconsin-Madison

Andrew McCormick, MD, Director, Healthy Transitions Program, Down Syndrome Center of Western Pennsylvania; Associate Professor of Pediatrics, University of Pittsburgh School of Medicine

Lina Patel, PsyD, Director of Psychology at the Sie Center for Down Syndrome, Children's Hospital Colorado; Assistant Professor, University of Colorado School of Medicine

Emilie Perkins, Director of Client and Conference Services, Raybourn Group International

Moya Peterson, PhD, APRN, FNP-BC, Adults with Down Syndrome Specialty Clinic, Department of Family Medicine and Community Health, University of Kansas Medical Center

Noemi Spinazzi, MD, Medical Director, Down Syndrome Clinic at UCSF Benoiff Children's Hospital Oakland; Assistant Clinical Professor, UCSF School of Medicine

Maria Stanley, MD, FAAP, Annual Symposium Committee Co-Chair; Clinical Professor of Pediatrics, University of Wisconsin School of Medicine and Public Health; Medical Director, Waisman Center; Director, Down Syndrome Clinic

Policy on Faculty and Sponsor Disclosure

It is the policy of the University of Wisconsin–Madison Interprofessional Continuing Education Partnership (ICEP) to identify, mitigate, and disclose all relevant financial relationships with ineligible companies* held by the speakers/presenters, authors, planners, and other persons who may influence the content of this accredited continuing education (CE). In addition, speakers/presenters and authors must disclose any planned discussion of unlabeled/unapproved uses of drugs or devices during their presentation(s). For this accredited continuing education activity all relevant financial relationships have been mitigated and detailed disclosures are listed below.

*Ineligible companies are those whose primary business is producing, marketing, selling, re-selling, or distributing healthcare products used by, or on, patients. The ACCME does not consider providers of clinical services directly to patients to be ineligible companies.

NAMEROLE(S)FINANCIAL RELATIONSHIPS DISCLOSUREDISCUSSION OF UNLABELED/UNAPPROVED USES OF DRUGS/DEVICES IN PRESENTATION?
Nicole Baumer, MD, MEdCommittee Member, SpeakerNo relevant relationships with ineligible companies to discloseYes
Peter Bulova, MDSpeakerNo relevant relationships with ineligible companies to discloseNo
Kimberly Canter, PhDSpeakerNo relevant relationships with ineligible companies to discloseNo
George Capone, MDSpeakerLuMind Foundation (Grant)No
Brian Chicoine, MDSpeakerNo relevant relationships with ineligible companies to discloseNo
Gabriela Eguiarte, MDCommittee MemberNo relevant relationships with ineligible companies to discloseNo
Joaquin Espinosa, PhDSpeakerNo relevant relationships with ineligible companies to discloseNo
Katie Frank, PhD, OTR/LCommittee Member, Speaker, Co-Course Director, Content ReviewerNo relevant relationships with ineligible companies to discloseNo
Margaret Froehlke, RN, BSNSpeakerNo relevant relationships with ineligible companies to discloseNo
Kevin Gipson, MD, MSSpeakerNo relevant relationships with ineligible companies to discloseNo
Jennifer Jett, MDSpeakerNo relevant relationships with ineligible companies to discloseNo
Bernard Khor, MD, PhDSpeakerFresh Tracks, Teraimmune, Pfizer (All Grant)No
Amy Lyle, MSSWCommittee MemberNo relevant relationships with ineligible companies to discloseNo
Andrew McCormick, MDCommittee MemberNo relevant relationships with ineligible companies to discloseNo
Cathy MeansPlannerNo relevant relationships with ineligible companies to discloseNo
Gustavo Nino, MDSpeakerNo relevant relationships with ineligible companies to discloseNo
Meghan O'Neill, MD, FAAPSpeakerNo relevant relationships with ineligible companies to discloseNo
Melissa Parisi, MD, PhDSpeakerKBS Real Estate Investment Trust (Other Securities); J.P. Morgan Chase & Co., and Microsoft (Both Stock)Yes
Lina Patel, PsyDCommittee Member, SpeakerNo relevant relationships with ineligible companies to discloseNo
Emilie PerkinsCommittee MemberNo relevant relationships with ineligible companies to discloseNo
Moya Peterson, PhD, APRN, FNP-BCCommittee MemberNo relevant relationships with ineligible companies to discloseNo
Mary Pipan, MDSpeakerNo relevant relationships with ineligible companies to discloseNo
Jonathan Santoro, MDSpeakerNo relevant relationships with ineligible companies to discloseNo
Noemi Spinazzi, MDCommittee Member, SpeakerNo relevant relationships with ineligible companies to discloseNo
Marisa Stahl, MDSpeakerTakeda Pharmaceutical Company, Pfizer (Both Contractor)No
Maria Stanley, MD, FAAPCommittee Member, Co-Course DirectorNo relevant relationships with ineligible companies to discloseNo
Mary Stephens, MD, MPH, FAAFP, FAADMSpeakerNo relevant relationships with ineligible companies to discloseNo
Gabriela Vega, MSSpeakerNo relevant relationships with ineligible companies to discloseNo
Kishore Vellody, MDSpeakerNo relevant relationships with ineligible companies to discloseNo
Gregory Young, PhD, LABA, BCBASpeakerNo relevant relationships with ineligible companies to discloseNo

 

Discloser List CME Internal Report

     Accreditation Statement

In support of improving patient care, this activity has been planned and implemented by the University of Wisconsin–Madison Interprofessional Continuing Education Partnership (ICEP) and the Down Syndrome Medical Interest Group-USA. The University of Wisconsin–Madison ICEP is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC) to provide continuing education for the healthcare team.

Credit Designation Statements

 
American Medical Association

The University of Wisconsin–Madison ICEP designates this live activity for a maximum of 10.75 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

American Board of Pediatrics (Maintenance of Certification-MOC)

Successful completion of this CME activity, which includes participation in the evaluation component, enables the learner to earn up to 10.75 MOC points in the American Board of Pediatrics' (ABP) Maintenance of Certification (MOC) program. It is the CME activity provider's responsibility to submit learner completion information to ACCME for the purpose of granting ABP MOC credit.

By completing the requirements for this activity, the learner gives UW-Madison ICEP permission to share completion data with the ACCME and the certifying board(s).

American Board of Internal Medicine (Maintenance of Certification-MOC)

Successful completion of this CME activity, which includes participation in the evaluation component, enables the participant to earn up to 10.75 MOC points in the American Board of Internal Medicine's (ABIM) Maintenance of Certification (MOC) program. It is the CME activity provider's responsibility to submit participant completion information to ACCME for the purpose of granting ABIM MOC credit.

By completing the requirements for this activity, the learner gives UW-Madison ICEP permission to share completion data with the ACCME and the certifying board(s).

Continuing Education (CE) credits for psychologists are provided through the co-sponsorship of the American Psychological Association (APA) Office of Continuing Education in Psychology (CEP). The APA CEP Office maintains responsibility for the content of the programs.

 
Association of Social Work Boards (ASWB)

As a Jointly Accredited Organization, the University of Wisconsin–Madison ICEP is approved to offer social work continuing education by the Association of Social Work Boards (ASWB) Approved Continuing Education (ACE) program. Organizations, not individual courses, are approved under this program. Regulatory boards are the final authority on courses accepted for continuing education credit. Social workers completing this course receive 10.75 general, live continuing education credits.

American Nurses Credentialing Center (ANCC)

The University of Wisconsin–Madison ICEP designates this live activity for a maximum of 10.75 ANCC contact hours.

Continuing Education Units (CEUs)

The University of Wisconsin–Madison ICEP, as a member of the University Professional & Continuing Education Association (UPCEA), authorizes this program for 1.075 CEUs or 10.75 hours.

 

 

 

 

 

 

Available Credit

  • 10.75 MOC: ABIM Medical Knowledge Points (Part II)
  • 10.75 MOC: ABP Lifelong Learning Points (Part II)
  • 10.75 AMA PRA Category 1 Credit
  • 10.75 ANCC Contact Hours
  • 10.75 APA CE Credits
  • 10.75 ACE Credits
  • 10.75 University of Wisconsin–Madison Continuing Education Hours
    • 10.75 Approved for AMA PRA Category 1 Credit™

Cost:
$399.00
Please login or register to take this course.

How to Register

Select any additional options and click "Add to cart."
Before checkout, you will have the option to add a coupon code(s) to reduce the cost to the prices below. Refunds will not be given for the difference in price if applicable coupons are not used during registration.
Be sure to make note of (or highlight and right-click>copy) the correct coupon code before you click "Add to cart" so you can add/paste it in the Coupon Code field.
Once added, click "Apply coupon"

Click 'Checkout" and follow the prompts to complete your order.

Registration for this activity can only be completed through the ICEP Learning Portal. Attendee registrations made through any other sites cannot be honored. UW-Madison ICEP is not able to refund fees paid through unaffiliated registration sites, such as eMedEvents.com, MedConfWorld.com, EventEgg.com, and 10times.com. Please report any unauthorized websites or solicitations for registrations to info@icep.wisc.edu.

Symposium Fees

Group Discount:

$25 off per registration when two or more register from the same organization! Request Group Discount
This coupon code is only eligible with member and non-member rates (it cannot be used with the student/trainee rate). 

Early Bird Fees (on or before June 1, 2023):

  • Members of DSMIG-USA® in good standing: $299 - email Emilie Perkins (eperkins@raybourn.com) for coupon code
  • Non-members: $349 - coupon code DSXEB23
  • Students/Trainees: $199 - coupon code DSS23

After June 1, 2023:

  • Members of DSMIG-USA® in good standing: $349 - email Emilie Perkins (eperkins@raybourn.com) for coupon code
  • Non-members: $399
  • Students/Trainees: $199 - coupon code DSS23

On-Site Registration Fee:

  • $399 (for everyone)

Welcome Reception:

  • $30

Saturday Workgroups:

  • $25

Cancellation and Refund Policy

Requests for cancellation must be submitted in writing to help@icep.wisc.edu. Cancellation requests received at least 96 hours prior to the symposium will allow a full refund except for the nonrefundable processing fee of $50. No refunds will be made for cancellations received less than 96 hours prior to the activity start date.

Accessibility

The University of Wisconsin provides equal opportunities in employment and programming, including Title IX requirements. The University of Wisconsin fully complies with the legal requirements of the ADA and the rules and regulations thereof. If any participant in this educational activity is in need of accommodations, please notify us at help@icep.wisc.edu

For Further Information

For symposium information email Emilie Perkins at eperkins@raybourn.com. For registration assistance, email help@icep.wisc.edu

Program Changes

Emergency situations occasionally occur and may necessitate topic or speaker changes. The University of Wisconsin School of Medicine and Public Health and the University of Wisconsin–Madison ICEP reserve the right to alter or substitute a topic or speaker without prior notification.