2021 Down Syndrome Medical Interest Group-USA (DSMIG-USA®) Annual Symposium (Virtual Conference): All Times Central Time

June 17, 2021 to June 19, 2021

Course Description

This symposium provides an interdisciplinary forum for the sharing of knowledge and experiences related to the clinical care of children and adults with Down syndrome, clinical research related to Down syndrome, and development of Down syndrome clinics. The intended audience is DSMIG-USA® members and other health professionals working and caring for people with Down syndrome including physicians, research scientists, nurses/nurse practitioners, Down syndrome clinic coordinators, psychologists, dietitians, occupational therapists, physical therapists, speech-language pathologists, social workers, and genetic counselors. Residents and trainees are also welcome.

Target Audience

This activity is intended for healthcare providers and researchers who have a special interest in the care of persons with Down syndrome including, but not limited to, Primary Care Physicians, Specialty Physicians, Physician Assistants, Nurses/Nurse Practitioners, Occupational Therapists, Physical Therapists, Speech-Language Pathologists, Psychologists, Dietitians, Social Workers, Down Syndrome Clinic Coordinators, Residents, and Trainees.

Learning Objectives

As a result of their active participation in this activity, learners will be able to:

  • Identify best practice management strategies for individuals who have Down syndrome along with their health management caregivers
  • Recognize and discuss trends in care for people with Down syndrome with interdisciplinary colleagues
  • Formulate best practice care plans with interdisciplinary colleagues to incorporate into their practice

Elements of Competence

This continuing education activity has been designed to change learner competence and focuses on the American Board of Medical Specialties areas of medical knowledge, patient care and procedural skills, and practice based learning and improvement. This activity also focuses on the interprofessional competencies of communication, roles/responsibilities, and teams/teamwork.

Symposium Fees

Pre-Payment is required! There will be no day-of registration.

If you would like to attend, but are not able to do so due to financial hardship, we will be providing a limited number of scholarships. For more information, please email Emilie Perkins at eperkins@raybourn.com to express your interest in one of the scholarships before you register.

Symposium fees include a nonrefundable $20 cancellation fee.

  • Members of DSMIG-USA® in good standing: $119
  • Non-members: $169
  • Students/Trainees: $50
  • Group Discount: $20 off per registration when two or more register from the same organization! Request Group Discount
    This coupon code is only eligible with member and non-member rates (it cannot be used with student/trainee rates). 

CANCELLATION AND REFUND POLICY

Requests for cancellation must be submitted in writing to help@icep.wisc.edu. Cancellations through May 14 will receive a full refund minus the $20 cancellation fee; May 15-June 1 there will be a 50% refund. No refunds will be made for cancellations received after June 1.

QUESTIONS ABOUT REGISTRATION

Email help@icep.wisc.edu.

FOR FURTHER INFORMATION

For symposium information contact Emilie Perkins at eperkins@raybourn.com.

PROGRAM CHANGES

Emergency situations occasionally occur and may necessitate topic or speaker changes. The University of Wisconsin School of Medicine and Public Health and the University of Wisconsin–Madison ICEP reserve the right to alter or substitute a topic or speaker without prior notification.

Course summary
Available credit: 
  • 5.25 AMA PRA Category 1 Credit
  • 5.25 ANCC Contact Hours
  • 5.25 APA CE Credits
  • 5.25 ACE Credits
  • 5.25 University of Wisconsin–Madison Continuing Education Hours
    • 5.25 Approved for AMA PRA Category 1 Credit™
Registration opens: 
04/29/2021
Course expires: 
12/31/2021
Event starts: 
06/17/2021 - 6:15pm
Event ends: 
06/19/2021 - 2:00pm
Cost:
$169.00
Rating: 
0

Friday, June 18, 2021

All Times are Central Time

AM 
9:00-9:05Welcome and Announcements, Maria Stanley, MD or Katie Frank, PhD, OTR/L
9:10-9:50Oncologic Complications of Down Syndrome, Jessica Pollard, MD
9:55-10:35Managing Hearing Difficulties in Children and Adolescents with Down Syndrome, Christine Heubi, MD; Susan Wiley, MD
10:35-10:45Break
10:45-12:05Lifespan Cardiology Care Panel, Matthew Elias, MD; Lyla El-Messidi Hampton, PhD, ABPP-CN; Stephanie Fuller, MD; Emily Sue Ruckdeschel, MD; Amanda Shillingford, MD; Thomas Spray, MD
PM 
12:05-12:45 Lunch
12:50-1:30Racism: A Societal Pathogen, Adiaha Spinks-Franklin, MD, MPH, FAAP
1:35-2:15Helping Children and Adults with Down Syndrome Cope with Grief, Rose Reif, LCMHC, CRC, BC-TMH
2:15-2:25Break
2:25-3:05Augmentative and Alternative Communication: Research, Clinical, and Family Perspectives for Individuals with Down Syndrome, Kayla Kristensen, MS, CCC-SLP; Annette Stone, MS, CCC-SLP
3:10-3:50Practice Changing Articles from the Past Year Top Research Articles, Peter Bulova, MD, Kishore Vellody, MD
3:50-4:00Wrap-up
4:00Adjourn

ADDITIONAL ACTIVITIES

Thursday, June 17, 2021

The Thursday activities are not accredited for continuing education credit.

6:15-7:00 PM Member Meeting

Non-members welcome! Join us to learn about DSMIG-USA activities during the past year and plans for future activities.

7:00-8:00 PM Poster Viewing/Q&A

Friday, June 18, 2021

9:00 AM-4:00 PM Annual Symposium

The Friday workgroups are not accredited for continuing education credit.

4:15-5:15 PM Therapy Workgroup; Leader: Helen Milligan, PT, MPT

The Therapist Workgroup is a community within DSMIG-USA whose members are therapists and/or educators in the areas of Occupational Therapy, Physical Therapy, or Speech Therapy. The group has an interest in advancing knowledge regarding best practices as it relates to therapy when treating those with Down syndrome considering commonly seen issues which may respond to therapy interventions at various ages.

At this workshop meeting the group will:

  • Discuss and establish goals including timelines for the upcoming year
  • Establish committees in each discipline to begin literature review regarding best practice for children and adults with DS at different ages and to look at similar recommendations which have been made for other diagnoses.

4:15-5:15 PM Clinic Support Workgroup Meeting; Leader: Terri Couwenhoven, MS

This meeting, previously for Clinic Coordinators only, is now for any Down syndrome clinic staff member (new or seasoned) interested in receiving guidance and/or support for clinic development, management, or operations. During this meeting, attendees will learn about updates on the clinic support section of the DSMIG website, and then share needs and challenges, program ideas, and success stories.

4:15-5:15 PM NIH INCLUDE Project Data Coordinating Center: A New Frontier in Down Syndrome Research; Leader: Joaquin Espinosa, PhD

The NIH INCLUDE Project has led to a massive increase in funding for Down syndrome research and its co-occurring conditions. The INCLUDE Data Coordinating Center (DCC) has been created to accelerate research into the etiology and biological pathways underlying the clinical and developmental hallmarks of Down syndrome by facilitating access to data generated by cohort studies of individuals with Down syndrome. This presentation will explain the goals and activities of the DCC, including the upcoming creation of an online researcher portal. A key goal of the DCC is to engage the medical professionals specialized in Down syndrome as key stakeholders in the INCLUDE Project. 

Saturday, June 19, 2021

The Saturday activities are not accredited for continuing education credit.

9:00-10:00 AM Poster Viewing/Q&A

10:15 AM-12:15 PM Adolescent and Adult Health Workgroup; Leader: George Capone, MD

This workgroup will provide an update on the Adult Healthcare Projects currently underway (medical literature reviews, MH/Regression, dementia screening, weight-lifestyle management, and CME activities). Group discussion, Q&A are planned. Facilitators: Mary Stephens, George Capone, Thessa Hilgenkamp, Kathy Service, Brian Chicoine

12:30-2:00 PM DS-ASD Workgroup; Leader: Lina Patel, PsyD

This workgroup will include discussions on what has been learned about DS-ASD in the past year, how to apply that learning to improving the quality of care for individuals with co-occurring Down syndrome and autism spectrum disorder, and what needs to be learned in the next year to advance our understanding of how best to serve the needs of these individuals and their families. A summary and updates regarding ongoing projects will be given in addition to applicable information for use within a clinical setting. 

 

This is a virtual conference (central time). Please see the program for further information.

SYMPOSIUM PRESENTERS

Peter Bulova, MD, Associate Professor of Medicine; Co-Director, Magee Center for Women with Disabilities; Director, University of Pittsburgh Adult Down Syndrome Center

George Capone, MD, Director, Kennedy Krieger Institute's Down Syndrome Clinic and Research Center

Brian Chicoine, MD, Medical Director, Advocate Medical Group Adult Down Syndrome Center

Terri Couwenhoven, MS, Clinic Coordinator, Children's Hospital of Wisconsin-Down Syndrome Clinic

Matthew Elias, MD, Attending Cardiologist; Clinical Assistant Professor of Pediatrics, Perelman School of Medicine at the University of Pennsylvania

Lyla El-Messidi Hampton, PhD, ABPP-CN, Pediatric Neuropsychologist, Cardiac Kids Developmental Follow Up Program, Children's Hospital of Philadelphia

Joaquin Espinosa, PhD, Executive Director, Linda Crnic Institute for Down Syndrome

Stephanie Fuller, MD, Attending Surgeon, Division of Cardiothoracic Surgery, Children's Hospital of Philadelphia

Justin Guinney, PhD, Vice President, Sage Bionetworks

Christine Heubi, MD, Pediatric Otolaryngologist; Assistant Professor and Surgical Director, Complex OSA Center, Cincinnati Children's Hospital Medical Center, University of Cincinnati Department of Otolaryngology-Head and Neck Surgery

Kayla Kristensen, MS, CCC-SLP, Speech-Language Pathologist, Down Syndrome Clinic; Research Specialist, Binaural Hearing and Speech Lab, Waisman Center Clinics UCEDD, University of Wisconsin-Madison

Helen Milligan, PT, MPT, Physical Therapist, Physical Therapy Department, Children's Hospital of Philadelphia

Lina Patel, PsyD, Director of Psychology at the Sie Center for Down Syndrome, Children's Hospital Colorado; Assistant Professor, University of Colorado School of Medicine

Jessica Pollard, MD, Assistant Professor of Pediatrics, Dana-Farber Cancer Institute, Boston Children's Cancer and Blood Disorders Center 

Rose Reif, LCMHC, CRC, BC-TMH, Reif Counseling Services, PLLC

Adam Resnick, MD, Director, Center for Data Driven Discovery, Children's Hospital, Philadelphia

Emily Sue Ruckdeschel, MD, Attending Physician; Assistant Professor, Perelman School of Medicine at the University of Pennsylvania

Amanda Shillingford, MD, Pediatric Cardiologist; Attending Physician; Children's Hospital of Philadelphia

Adiaha Spinks-Franklin, MD, MPH, FAAP, Associate Professor of Pediatrics, Board Certified Developmental-Behavioral Pediatrician, Texas Children's Hospital/Baylor College of Medicine

Thomas Spray, MD, Endowed Chair in Pediatric Cardiothoracic Surgery; Associate Professor, Perelman School of Medicine at the University of Pennsylvania, Children's Hospital of Philadelphia

Annette Stone, MA, CCC-SLP, Senior Clinical Speech Pathologist; AAC Program Director, Waisman Center Clinics UCEDD, University of Wisconsin-Madison

Kishore Vellody, MD, Professor of Pediatrics; Medical Director of Down Syndrome Center of Pennsylvania; University of Pittsburgh School of Medicine

Susan Wiley, MD, Developmental Pediatrician; Professor and Director, Thomas Center for Down Syndrome, Cincinnati Children's Hospital Medical Center, University of Cincinnati Department of Pediatrics

SYMPOSIUM PLANNING COMMITTEE 

Nicole Baumer, MD, MEd, Director, Boston Children's Hospital Down Syndrome Program

Gabriela Eguiarte, MD, Pediatrician, Angeles Pedregal Hospital, Mexico

Katie Frank, PhD, OTR/L, Annual Symposium Committee Co-Chair; Occupational Therapist III, Advocate Medical Group Adult Down Syndrome Center

Judy Kim, MD, Assistant Professor, Center for Transition Medicine, Baylor College of Medicine

Amy Lyle, MSSW, Clinic Coordinator, Waisman Down Syndrome Clinic, University of Wisconsin-Madison

Andrew McCormick, MD, Director, Healthy Transitions Program, Down Syndrome Center of Western Pennsylvania; Associate Professor of Pediatrics, University of Pittsburgh School of Medicine

Lina Patel, PsyD, Director of Psychology at the Sie Center for Down Syndrome, Children's Hospital Colorado; Assistant Professor, University of Colorado School of Medicine

Emilie Perkins, Director of Client and Conference Services, Raybourn Group International

Moya Peterson, PhD, APRN, FNP-BC, Adults with Down Syndrome Specialty Clinic, Department of Family Medicine and Community Health, University of Kansas Medical Center

Noemi Spinazzi, MD, Medical Director, Down Syndrome Clinic at UCSF Benoiff Children's Hospital Oakland; Assistant Clinical Professor, UCSF School of Medicine

Maria Stanley, MD, FAAP, Annual Symposium Committee Co-Chair; Clinical Professor of Pediatrics, University of Wisconsin School of Medicine and Public Health; Medical Director, Waisman Center; Director, Down Syndrome Clinic

Policy on Disclosure

It is the policy of the University of Wisconsin–Madison Interprofessional Continuing Education Partnership (ICEP) to identify, mitigate and disclose all relevant financial relationships with ineligible companies* held by the speakers/presenters, authors, planners, and other persons who may influence content of this accredited continuing education (CE). In addition, speakers/presenters and authors must disclose any planned discussion of unlabeled/unapproved uses of drugs or devices during their presentation(s). Detailed disclosures will be available prior to the start of the activity.

*Ineligible companies are those whose primary business is producing, marketing, selling, re-selling, or distributing healthcare products used by, or on, patients. The ACCME does not consider providers of clinical services directly to patients to be commercial interests.

 

Discloser List CME Internal Report

Accreditation Statement

In support of improving patient care, this activity has been planned and implemented by the University of Wisconsin–Madison ICEP and the Down Syndrome Medical Interest Group-USA. The University of Wisconsin–Madison ICEP is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC) to provide continuing education for the healthcare team.

Credit Designation Statements

 
American Medical Association

The University of Wisconsin–Madison ICEP designates this live activity for a maximum of 5.25 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Continuing Education (CE) credits for psychologists are provided through the co-sponsorship of the American Psychological Association (APA) Office of Continuing Education in Psychology (CEP). The APA CEP Office maintains responsibility for the content of the programs.
 
Association of Social Work Boards (ASWB)

As a Jointly Accredited Organization, the University of Wisconsin–Madison Interprofessional Continuing Education Partnership (ICEP) is approved to offer social work continuing education by the Association of Social Work Boards (ASWB) Approved Continuing Education (ACE) program. Organizations, not individual courses, are approved under this program. State and provincial regulatory boards have the final authority to determine whether an individual course may be accepted for continuing education credit. The University of Wisconsin–Madison ICEP maintains responsibility for this course. Social workers completing this course receive 5.25 live continuing education credits.

American Nurses Credentialing Center (ANCC)

The University of Wisconsin–Madison ICEP designates this live activity for a maximum of 5.25 ANCC contact hours.

Continuing Education Units (CEUs)

The University of Wisconsin–Madison ICEP, as a member of the University Professional & Continuing Education Association (UPCEA), authorizes this program for .525 CEUs or 5.25 hours.

 

 

 

 

 

 

Available Credit

  • 5.25 AMA PRA Category 1 Credit
  • 5.25 ANCC Contact Hours
  • 5.25 APA CE Credits
  • 5.25 ACE Credits
  • 5.25 University of Wisconsin–Madison Continuing Education Hours
    • 5.25 Approved for AMA PRA Category 1 Credit™

Price

Cost:
$169.00
Please login or register to take this course.

Symposium Fees

Pre-Payment is required! There will be no day-of registration.

If you would like to attend, but are not able to do so due to financial hardship, we will be providing a limited number of scholarships. For more information, please email Emilie Perkins at eperkins@raybourn.com to express your interest in one of the scholarships before you register.

Symposium fees include a nonrefundable $20 cancellation fee.

  • Members of DSMIG-USA® in good standing: $119
  • Non-members: $169
  • Students/Trainees: $50
  • Group Discount: $20 off per registration when two or more register from the same organization! Request Group Discount
    This coupon code is only eligible with member and non-member rates (it cannot be used with student/trainee rates). 

CANCELLATION AND REFUND POLICY

Requests for cancellation must be submitted in writing to help@icep.wisc.edu. Cancellations through May 14 will receive a full refund minus the $20 cancellation fee; May 15-June 1 there will be a 50% refund. No refunds will be made for cancellations received after June 1.

QUESTIONS ABOUT REGISTRATION

Email help@icep.wisc.edu.

FOR FURTHER INFORMATION

For symposium information contact Emilie Perkins at eperkins@raybourn.com.

Required Hardware/software

Computer, tablet, or smartphone with audio sharing capabilities.