2021 Down Syndrome Medical Interest Group-USA (DSMIG-USA®) Annual Symposium (Virtual Conference): All Times Central Time
Course Description
This symposium provides an interdisciplinary forum for the sharing of knowledge and experiences related to the clinical care of children and adults with Down syndrome, clinical research related to Down syndrome, and development of Down syndrome clinics. The intended audience is DSMIG-USA® members and other health professionals working and caring for people with Down syndrome including physicians, research scientists, nurses/nurse practitioners, Down syndrome clinic coordinators, psychologists, dietitians, occupational therapists, physical therapists, speech-language pathologists, social workers, and genetic counselors. Residents and trainees are also welcome.
Target Audience
This activity is intended for healthcare providers and researchers who have a special interest in the care of persons with Down syndrome including, but not limited to, Primary Care Physicians, Specialty Physicians, Physician Assistants, Nurses/Nurse Practitioners, Occupational Therapists, Physical Therapists, Speech-Language Pathologists, Psychologists, Dietitians, Social Workers, Down Syndrome Clinic Coordinators, Residents, and Trainees.
Learning Objectives
As a result of their active participation in this activity, learners will be able to:
- Identify best practice management strategies for individuals who have Down syndrome along with their health management caregivers
- Recognize and discuss trends in care for people with Down syndrome with interdisciplinary colleagues
- Formulate best practice care plans with interdisciplinary colleagues to incorporate into their practice
Elements of Competence
This continuing education activity has been designed to change learner competence and focuses on the American Board of Medical Specialties areas of medical knowledge, patient care and procedural skills, and practice based learning and improvement. This activity also focuses on the interprofessional competencies of communication, roles/responsibilities, and teams/teamwork.
Symposium Fees
Pre-Payment is required! There will be no day-of registration.
If you would like to attend, but are not able to do so due to financial hardship, we will be providing a limited number of scholarships. For more information, please email Emilie Perkins at eperkins@raybourn.com to express your interest in one of the scholarships before you register.
Symposium fees include a nonrefundable $20 cancellation fee.
- Members of DSMIG-USA® in good standing: $119
- Non-members: $169
- Students/Trainees: $50
- Group Discount: $20 off per registration when two or more register from the same organization! Request Group Discount
This coupon code is only eligible with member and non-member rates (it cannot be used with student/trainee rates).
CANCELLATION AND REFUND POLICY
Requests for cancellation must be submitted in writing to help@icep.wisc.edu. Cancellations through May 14 will receive a full refund minus the $20 cancellation fee; May 15-June 1 there will be a 50% refund. No refunds will be made for cancellations received after June 1.
QUESTIONS ABOUT REGISTRATION
Email help@icep.wisc.edu.
FOR FURTHER INFORMATION
For symposium information contact Emilie Perkins at eperkins@raybourn.com.
PROGRAM CHANGES
Emergency situations occasionally occur and may necessitate topic or speaker changes. The University of Wisconsin School of Medicine and Public Health and the University of Wisconsin–Madison ICEP reserve the right to alter or substitute a topic or speaker without prior notification.
Friday, June 18, 2021
All Times are Central Time
AM | |
9:00-9:05 | Welcome and Announcements, Maria Stanley, MD or Katie Frank, PhD, OTR/L |
9:10-9:50 | Oncologic Complications of Down Syndrome, Jessica Pollard, MD |
9:55-10:35 | Managing Hearing Difficulties in Children and Adolescents with Down Syndrome, Christine Heubi, MD; Susan Wiley, MD |
10:35-10:45 | Break |
10:45-12:05 | Lifespan Cardiology Care Panel, Matthew Elias, MD; Lyla El-Messidi Hampton, PhD, ABPP-CN; Stephanie Fuller, MD; Emily Sue Ruckdeschel, MD; Amanda Shillingford, MD |
PM | |
12:05-12:25 | Lunch |
12:30-1:30 | Racism: A Societal Pathogen, Adiaha Spinks-Franklin, MD, MPH, FAAP |
1:35-2:15 | Helping Children and Adults with Down Syndrome Cope with Grief, Rose Reif, LCMHC, CRC, BC-TMH |
2:15-2:25 | Break |
2:25-3:05 | Augmentative and Alternative Communication: Research, Clinical, and Family Perspectives for Individuals with Down Syndrome, Kayla Kristensen, MS, CCC-SLP; Annette Stone, MS, CCC-SLP |
3:10-3:50 | Practice Changing Articles from the Past Year Top Research Articles, Peter Bulova, MD, Kishore Vellody, MD |
3:50-4:00 | Wrap-up |
4:00 | Adjourn |
ADDITIONAL ACTIVITIES
Thursday, June 17, 2021
The Thursday activities are not accredited for continuing education credit.
6:15-7:00 PM Member Meeting
Non-members welcome! Join us to learn about DSMIG-USA activities during the past year and plans for future activities.
7:00-8:00 PM Poster Viewing/Q&A
Friday, June 18, 2021
9:00 AM-4:00 PM Annual Symposium
The Friday workgroups are not accredited for continuing education credit.
4:15-5:15 PM Therapy Workgroup; Leader: Helen Milligan, PT, MPT
The Therapist Workgroup is a community within DSMIG-USA whose members are therapists and/or educators in the areas of Occupational Therapy, Physical Therapy, or Speech Therapy. The group has an interest in advancing knowledge regarding best practices as it relates to therapy when treating those with Down syndrome considering commonly seen issues which may respond to therapy interventions at various ages.
At this workshop meeting the group will:
- Discuss and establish goals including timelines for the upcoming year
- Establish committees in each discipline to begin literature review regarding best practice for children and adults with DS at different ages and to look at similar recommendations which have been made for other diagnoses.
4:15-5:15 PM Clinic Support Workgroup Meeting; Leader: Terri Couwenhoven, MS
This meeting, previously for Clinic Coordinators only, is now for any Down syndrome clinic staff member (new or seasoned) interested in receiving guidance and/or support for clinic development, management, or operations. During this meeting, attendees will learn about updates on the clinic support section of the DSMIG website, and then share needs and challenges, program ideas, and success stories.
4:15-5:15 PM NIH INCLUDE Project Data Coordinating Center: A New Frontier in Down Syndrome Research; Leader: Joaquin Espinosa, PhD
The NIH INCLUDE Project has led to a massive increase in funding for Down syndrome research and its co-occurring conditions. The INCLUDE Data Coordinating Center (DCC) has been created to accelerate research into the etiology and biological pathways underlying the clinical and developmental hallmarks of Down syndrome by facilitating access to data generated by cohort studies of individuals with Down syndrome. This presentation will explain the goals and activities of the DCC, including the upcoming creation of an online researcher portal. A key goal of the DCC is to engage the medical professionals specialized in Down syndrome as key stakeholders in the INCLUDE Project.
Saturday, June 19, 2021
The Saturday activities are not accredited for continuing education credit.
9:00-10:00 AM Poster Viewing/Q&A
10:15 AM-12:15 PM Adolescent and Adult Health Workgroup; Leader: George Capone, MD
This workgroup will provide an update on the Adult Healthcare Projects currently underway (medical literature reviews, MH/Regression, dementia screening, weight-lifestyle management, and CME activities). Group discussion, Q&A are planned. Facilitators: Mary Stephens, George Capone, Thessa Hilgenkamp, Kathy Service, Brian Chicoine
12:30-2:00 PM DS-ASD Workgroup; Leader: Lina Patel, PsyD
This workgroup will include discussions on what has been learned about DS-ASD in the past year, how to apply that learning to improving the quality of care for individuals with co-occurring Down syndrome and autism spectrum disorder, and what needs to be learned in the next year to advance our understanding of how best to serve the needs of these individuals and their families. A summary and updates regarding ongoing projects will be given in addition to applicable information for use within a clinical setting.
This is a virtual conference (central time). Please see the program for further information.
SYMPOSIUM PRESENTERS
Peter Bulova, MD, Associate Professor of Medicine; Co-Director, Magee Center for Women with Disabilities; Director, University of Pittsburgh Adult Down Syndrome Center
George Capone, MD, Director, Kennedy Krieger Institute's Down Syndrome Clinic and Research Center
Brian Chicoine, MD, Medical Director, Advocate Medical Group Adult Down Syndrome Center
Terri Couwenhoven, MS, Clinic Coordinator, Children's Hospital of Wisconsin-Down Syndrome Clinic
Matthew Elias, MD, Attending Cardiologist; Clinical Assistant Professor of Pediatrics, Perelman School of Medicine at the University of Pennsylvania
Lyla El-Messidi Hampton, PhD, ABPP-CN, Pediatric Neuropsychologist, Cardiac Kids Developmental Follow Up Program, Children's Hospital of Philadelphia
Joaquin Espinosa, PhD, Executive Director, Linda Crnic Institute for Down Syndrome
Stephanie Fuller, MD, Attending Surgeon, Division of Cardiothoracic Surgery, Children's Hospital of Philadelphia
Justin Guinney, PhD, Vice President, Sage Bionetworks
Christine Heubi, MD, Pediatric Otolaryngologist; Assistant Professor and Surgical Director, Complex OSA Center, Cincinnati Children's Hospital Medical Center, University of Cincinnati Department of Otolaryngology-Head and Neck Surgery
Kayla Kristensen, MS, CCC-SLP, Speech-Language Pathologist, Down Syndrome Clinic; Research Specialist, Binaural Hearing and Speech Lab, Waisman Center Clinics UCEDD, University of Wisconsin-Madison
Helen Milligan, PT, MPT, Physical Therapist, Physical Therapy Department, Children's Hospital of Philadelphia
Lina Patel, PsyD, Director of Psychology at the Sie Center for Down Syndrome, Children's Hospital Colorado; Assistant Professor, University of Colorado School of Medicine
Jessica Pollard, MD, Assistant Professor of Pediatrics, Dana-Farber Cancer Institute, Boston Children's Cancer and Blood Disorders Center
Rose Reif, LCMHC, CRC, BC-TMH, Reif Counseling Services, PLLC
Adam Resnick, MD, Director, Center for Data Driven Discovery, Children's Hospital, Philadelphia
Emily Sue Ruckdeschel, MD, Attending Physician; Assistant Professor, Perelman School of Medicine at the University of Pennsylvania
Amanda Shillingford, MD, Pediatric Cardiologist; Attending Physician; Children's Hospital of Philadelphia
Adiaha Spinks-Franklin, MD, MPH, FAAP, Associate Professor of Pediatrics, Board Certified Developmental-Behavioral Pediatrician, Texas Children's Hospital/Baylor College of Medicine
Annette Stone, MA, CCC-SLP, Senior Clinical Speech Pathologist; AAC Program Director, Waisman Center Clinics UCEDD, University of Wisconsin-Madison
Kishore Vellody, MD, Professor of Pediatrics; Medical Director of Down Syndrome Center of Pennsylvania; University of Pittsburgh School of Medicine
Susan Wiley, MD, Developmental Pediatrician; Professor and Director, Thomas Center for Down Syndrome, Cincinnati Children's Hospital Medical Center, University of Cincinnati Department of Pediatrics
SYMPOSIUM PLANNING COMMITTEE
Nicole Baumer, MD, MEd, Director, Boston Children's Hospital Down Syndrome Program
Gabriela Eguiarte, MD, Pediatrician, Angeles Pedregal Hospital, Mexico
Katie Frank, PhD, OTR/L, Annual Symposium Committee Co-Chair; Occupational Therapist III, Advocate Medical Group Adult Down Syndrome Center
Judy Kim, MD, Assistant Professor, Center for Transition Medicine, Baylor College of Medicine
Amy Lyle, MSSW, Clinic Coordinator, Waisman Down Syndrome Clinic, University of Wisconsin-Madison
Andrew McCormick, MD, Director, Healthy Transitions Program, Down Syndrome Center of Western Pennsylvania; Associate Professor of Pediatrics, University of Pittsburgh School of Medicine
Lina Patel, PsyD, Director of Psychology at the Sie Center for Down Syndrome, Children's Hospital Colorado; Assistant Professor, University of Colorado School of Medicine
Emilie Perkins, Director of Client and Conference Services, Raybourn Group International
Moya Peterson, PhD, APRN, FNP-BC, Adults with Down Syndrome Specialty Clinic, Department of Family Medicine and Community Health, University of Kansas Medical Center
Noemi Spinazzi, MD, Medical Director, Down Syndrome Clinic at UCSF Benoiff Children's Hospital Oakland; Assistant Clinical Professor, UCSF School of Medicine
Maria Stanley, MD, FAAP, Annual Symposium Committee Co-Chair; Clinical Professor of Pediatrics, University of Wisconsin School of Medicine and Public Health; Medical Director, Waisman Center; Director, Down Syndrome Clinic
Policy on Disclosure
It is the policy of the University of Wisconsin–Madison Interprofessional Continuing Education Partnership (ICEP) to identify, mitigate and disclose all relevant financial relationships with ineligible companies* held by the speakers, authors, planners, and other persons who may influence content of this accredited continuing education (CE). In addition, speakers and authors must disclose any planned discussion of unlabeled/unapproved uses of drugs or devices during their presentation. For this accredited continuing education activity all relevant financial relationships have been mitigated and detailed disclosures are listed below.
*Ineligible companies are those whose primary business is producing, marketing, selling, re-selling, or distributing healthcare products used by, or on, patients. The ACCME does not consider providers of clinical services directly to patients to be commercial interests.
NAME | ROLE(S) | FINANCIAL RELATIONSHIPS DISCLOSURE(S) | DISCUSSION OF UNLABELED/UNAPPROVED USES OF DRUGS/DEVICES IN PRESENTATION? |
Nicole Baumer, MD, MEd | Planner | No relevant relationships with ineligible companies to disclose | N/A |
Peter Bulova, MD | Speaker | No relevant relationships with ineligible companies to disclose | No |
Gabriela Eguiarte, MD | Planner | No relevant relationships with ineligible companies to disclose | N/A |
Matthew Elias, MD | Speaker | No relevant relationships with ineligible companies to disclose | No |
Katie Frank, PhD, OTR/L | Co-Director, Planner | No relevant relationships with ineligible companies to disclose | No |
Stephanie Fuller, MD | Speaker | W.L. Gore & Associates (Contractor) | No |
Lydia El-Messidi Hampton, PhD | Speaker | No relevant relationships with ineligible companies to disclose | No |
Christine Huebi, MD | Speaker | No relevant relationships with ineligible companies to disclose | No |
Judy Kim, MD | Planner | No relevant relationships with ineligible companies to disclose | N/A |
Kayla Kristensen, MS, CCC-SLP | Speaker | No relevant relationships with ineligible companies to disclose | No |
Amy Lyle, MSSW | Planner | No relevant relationships with ineligible companies to disclose | N/A |
Andrew McCormick, MD | Planner | No relevant relationships with ineligible companies to disclose | N/A |
Cathy Means | Planner | No relevant relationships with ineligible companies to disclose | N/A |
Lina Patel, PsyD | Planner | No relevant relationships with ineligible companies to disclose | N/A |
Emilie Perkins | Planner | No relevant relationships with ineligible companies to disclose | N/A |
Moya Peterson, PhD, APRN | Planner | No relevant relationships with ineligible companies to disclose | N/A |
Jessica Pollard, MD | Speaker | Kura Oncology; Syndax Pharmaceuticals (Both Contractor) | No |
Rose Reif, LCMHC, CRC | Speaker | No relevant relationships with ineligible companies to disclose | No |
Emily Sue Ruckdeschel, MD | Speaker | No relevant relationships with ineligible companies to disclose | No |
Amanda Shillingford, MD | Speaker | No relevant relationships with ineligible companies to disclose | No |
Noemi Spinazzi, MD | Planner | Bracco Diagnostics, Inc. (Contractor and Grant) | N/A |
Adiaha Spinks-Franklin, MD, MPH | Speaker | No relevant relationships with ineligible companies to disclose | No |
Maria Stanley, MD | Co-Director, Planner | No relevant relationships with ineligible companies to disclose | No |
Annette Stone, MS, CCC-SLP | Speaker | No relevant relationships with ineligible companies to disclose | No |
Kishore Vellody, MD | Speaker | No relevant relationships with ineligible companies to disclose | No |
Susan Wiley, MD | Speaker | No relevant relationships with ineligible companies to disclose | No |
Accreditation Statement
![]() | In support of improving patient care, this activity has been planned and implemented by the University of Wisconsin–Madison ICEP and the Down Syndrome Medical Interest Group-USA. The University of Wisconsin–Madison ICEP is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC) to provide continuing education for the healthcare team. |
Credit Designation Statements | |
American Medical Association | The University of Wisconsin–Madison ICEP designates this live activity for a maximum of 5.75 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity. |
![]() | Continuing Education (CE) credits for psychologists are provided through the co-sponsorship of the American Psychological Association (APA) Office of Continuing Education in Psychology (CEP). The APA CEP Office maintains responsibility for the content of the programs. |
Association of Social Work Boards (ASWB) | As a Jointly Accredited Organization, the University of Wisconsin–Madison Interprofessional Continuing Education Partnership (ICEP) is approved to offer social work continuing education by the Association of Social Work Boards (ASWB) Approved Continuing Education (ACE) program. Organizations, not individual courses, are approved under this program. State and provincial regulatory boards have the final authority to determine whether an individual course may be accepted for continuing education credit. The University of Wisconsin–Madison ICEP maintains responsibility for this course. Social workers completing this course receive 5.75 live continuing education credits. |
American Nurses Credentialing Center (ANCC) | The University of Wisconsin–Madison ICEP designates this live activity for a maximum of 5.75 ANCC contact hours. |
Continuing Education Units (CEUs) | The University of Wisconsin–Madison ICEP, as a member of the University Professional & Continuing Education Association (UPCEA), authorizes this program for .575 CEUs or 5.75 hours. |
Available Credit
- 5.75 AMA PRA Category 1 Credit™
- 5.75 ANCC Contact Hours
- 5.75 APA CE Credits
- 5.75 University of Wisconsin–Madison Continuing Education Hours
- 5.25 Approved for AMA PRA Category 1 Credit™
Price
Symposium Fees
Pre-Payment is required! There will be no day-of registration.
If you would like to attend, but are not able to do so due to financial hardship, we will be providing a limited number of scholarships. For more information, please email Emilie Perkins at eperkins@raybourn.com to express your interest in one of the scholarships before you register.
Symposium fees include a nonrefundable $20 cancellation fee.
- Members of DSMIG-USA® in good standing: $119
- Non-members: $169
- Students/Trainees: $50
- Group Discount: $20 off per registration when two or more register from the same organization! Request Group Discount
This coupon code is only eligible with member and non-member rates (it cannot be used with student/trainee rates).
CANCELLATION AND REFUND POLICY
Requests for cancellation must be submitted in writing to help@icep.wisc.edu. Cancellations through May 14 will receive a full refund minus the $20 cancellation fee; May 15-June 1 there will be a 50% refund. No refunds will be made for cancellations received after June 1.
QUESTIONS ABOUT REGISTRATION
Email help@icep.wisc.edu.
FOR FURTHER INFORMATION
For symposium information contact Emilie Perkins at eperkins@raybourn.com.
Required Hardware/software
Computer, tablet, or smartphone with audio sharing capabilities.