2019 Down Syndrome Medical Interest Group-USA (DSMIG-USA®) Annual Symposium

Pittsburgh, PA US
June 28, 2019

Course Description

This symposium provides an interdisciplinary forum for sharing of knowledge and experiences related to clinical care of children and adults with Down syndrome, clinical research related to Down syndrome, and development of Down syndrome clinics. The intended audience is DSMIG-USA® members and other professionals working in the field of Down syndrome including physicians, research scientists, nurses/nurse practitioners, Down syndrome clinic coordinators, psychologists, dietitians, occupational and physical therapists, speech-language pathologists, and social workers.  Residents and trainees are welcome to attend.

Visit the conference website (http://dsmig.pediatrics.wisc.edu) to see the full schedule and additional details.

Learning Objectives

As a result of their active participation in this course, learners will be able to:

  • Identify best practice management strategies for individuals who have Down syndrome and their caregivers
  • Recognize and discuss trends in care for people with Down syndrome with interdisciplinary colleagues
  • Formulate best practice care plans with interdisciplinary colleagues to incorporate into their practice

Elements of Competence

This continuing education activity has been designed to change learner competence and focuses on the American Board of Medical Specialties areas of medical knowledge, patient care and procedural skills, and practice based learning and improvement. This activity also focuses on the interprofessional competencies of communication, roles/responsibilities, and teams/teamwork.

Symposium Fees

Pre-Payment is Required!

Symposium fees include all sessions, handouts and/or reference materials, a nonrefundable $20 cancellation fee, and continental breakfast, lunch, and breaks.  Note:  lunch is not included in the half-day registration. 

Cancellations through May 10 will receive a full refund minus the $20 cancellation fee; May 11-June 14 there will be a 50% refund.  No refunds will be made for cancellations received after June 14.

Early Registration:  Through May 10, 2019

  • Members of DSMIG-USA® in good standing: $250; Please see email for member coupon code.
  • Non-members: $300 Please use Coupon Code DSMIG19EB at checkout. 
  • Students/Trainees: $175

Registration:  May 11 to June 21, 2019:

  • Members of DSMIG-USA® in good standing: $275; Please see email for member coupon code.
  • Non-members: $325
  • Students/Trainees: $175

Half Day Rate (AM/PM):

  • $150 (no lunch provided)

After June 21: 

  • Registration only if space allows: $350
  • On-site registration: based on space availability


**Light beverages and food will be provided at these events.  Please note the additional fees to attend some of these activities.

Education Event for Local Providers

  • Wednesday, June 26, 6:00-8:30 PM, Free Event!

DSMIG-USA® Members Meeting

Come to learn more about what the organization has been working on this past year and opportunities to become more involved.

  • Thursday, June 27, 5:30-6:30 PM, Free Event!

Welcome Reception and Poster Viewing

The DSMIG Annual Symposium reception is a great time for you to meet the greater community of professionals who care about, and care for, individuals with Down syndrome.  You can network, meet new people, visit with old friends, and see new research and information on the posters.  Light refreshments will be served and a cash bar will be available.

  • Thursday, June 27, 6:30-8:00 PM, $25/person

Clinic Coordinators Meeting

  • Friday, June 28, 6:30-8:30 PM, $15/person

Childhood DS-ASD Work Group Meeting

This work group will include a presentation reviewing the most current literature covering descriptions of individuals diagnosed with DS-ASD, recommendations for assessment, and strategies for intervention.  We will also present the status of research projects that are underway or in the planning stages and establish goals and timelines for those projects.  Finally, we will begin the important job of deciding on what we believe at this time to be recommended practices for evaluating and treating problems associated with DS-ASD and how best to disseminate that information to providers.  Facilitator:  Brian Belden

  • Saturday, June 29, 7:30-9:15 AM, $25/person

Adult Health Care Work Group Meeting

This work group aims to discuss next steps for the Adult Healthcare Guidelines project that is currently underway.  Initiate discussion about training health care providers to provide dementia care and ongoing data collection efforts underway in many of our adult clinics.  Facilitators:  George Capone, MD, and Peter Bulova, MD

  • Saturday, June 29, 9:30-11:30 AM, $25/person

Adult Regression Work Group Meeting

This work group will review work to date developing a description, definition, and diagnostic approach to regression seen in people with Down syndrome with an emphasis on regression seen in adolescents and young adults.  The group will solicit further information from participants based on experience and literature review.  Facilitator:  Brian Chicoine

  • Saturday, June 29, 11:45 AM-1:45 PM, $25/person


Requests for cancellation must be submitted in writing to help@icep.wisc.edu. Cancellations through May 10 will receive a full refund minus the $20 cancellation fee; May 11-June 14 there will be a 50% refund. No refunds will be made for cancellations received after June 14.


Email help@icep.wisc.edu.


Emergency situations occasionally occur and may necessitate topic or speaker changes. The University of Wisconsin School of Medicine and Public Health and the University of Wisconsin–Madison ICEP reserve the right to alter or substitute a topic or speaker without prior notification.


For symposium information contact Dottie Winger at 608/263-8542 or winger2@wisc.edu.

Target Audience

This activity is intended for healthcare providers with a special interest in the care of persons with Down syndrome including, but not limited to: Primary Care Physicians, Specialty Physicians, Physician Assistants, Nurses/Nurse Practitioners, Occupational Therapists, Physical Therapists, Speech Therapists, Psychologists, Dietitians, Social Workers, Trainees, and Down Syndrome Clinic Coordinators.

    Course summary
    Available credit: 
    • 7.50 AMA PRA Category 1 Credit
    • 7.50 University of Wisconsin–Madison Continuing Education Hours
    Course opens: 
    Course expires: 
    Event starts: 
    06/28/2019 - 8:00am
    Event ends: 
    06/28/2019 - 6:00pm

    Registration/Check-in and Continental Breakfast


    Welcome and Announcements, Maria Stanley, MD

    8:15Infections in Children and Young Adults with Down Syndrome:  A National Survey, Andrew Nowalk, MD, PhD
    9:00Physical Activity and Fitness for Individuals with Down Syndrome:  From What We Know to What We Can Do, Thessa Hilgenkamp, PhD; Judy Kim, MD
    9:45Moyamoya and Down Syndrome:  A Pediatric Neurosurgery Perspective, Edward Smith, MD
    10:45The Colorful and Complex:  Behavioral and Mental Health Case Studies of Children and Adults with Down Syndrome, George Capone, MD (Moderator); Catherine Franklin, MD; Cassie Karlson, MD; Michelle Palumbo, MD; Elise Sannar, MD
    12:15Lunch and Poster Viewing
    1:30NDSC Update, David Tolleson, Executive Director; Kishore Vellody, MD, President
    1:45Review of Research, Peter Bulova, MD; Kishore Vellody, MD
    2:30Dermatologic Conditions in Down Syndrome, Jillian Rork, MD
    3:30Dysphagia Across the Age Spectrum, Arwen Jackson, CCC-SLP; Jenny Maybee, CCC-SLP
    4:15End of Life in Adults with Down Syndrome, Diego Real de Asúa, MD, PhD
    5:00Tech Tools and Solutions to Support Communication and Learning, Sean Smith, PhD
    5:45Closing Announcements
    David L. Lawrence Convention Center
    1000 Fort Duquesne Boulevard
    Pittsburgh, PA 15222
    United States


    Peter Bulova, MD, Associate Professor of Medicine; Co-Director, Magee Center for Women with Disabilities; Director, University of Pittsburgh Adult Down Syndrome Center

    George Capone, MD, Director, Down Syndrome Clinic and Research Center

    Catherine Franklin, MD, MBBS, MPhil, Director, Mater Intellectual Disability and Autism Service

    Thessa Hilgenkamp, PhD, Department of Kinesiology and Nutrition, University of Illinois at Chicago

    Arwen Jackson, CCC-SLP, Children's Hospital Colorado

    Cassie Karlson, MD, Medical Director, Simon Skojdt Child and Adolescent Behavioral Health Unit, Riley Hospital for Children, Indiana

    Judy Lu Kim, MD, Assistant Professor, Department of Medicine, Transition Medicine, Baylor College of Medicine

    Jenny Maybee, CCC-SLP, Children's Hospital Colorado

    Andrew J. Nowalk, MD, PhD, Associate Professor and Clinical Director, Division of Infectious Disease, UPMC Children's Hospital of Pittsburgh

    Michelle L. Palumbo, MD, Consulting Psychiatrist for the MGH Down Syndrome Program

    Diego Real de Asúa, MD, PhD, Attending Physician, Adult Down Syndrome Unit, La Princesa University Hospital, Madrid, Spain

    Jillian F. Rork, MD, Assistant Professor, Pediatric Dermatology, Section of Dermatology, Dartmouth-Hitchcock Medical Center, Children's Hospital at Dartmouth-Hitchcock

    Elise Sannar, MD, Sie Center for Down Syndrome, Children's Hospital Colorado

    Sean Smith, PhD, Professor of Special Education, University of Kansas; Associate Researcher, Center for Research on Learning

    Edward R. Smith, MD, Co-Director, Cerebrovascular Surgery and Interventions Center; Director, Pediatric Cerebrovascular Surgery, Boston Children's Hospital; Chair Neurosurgery, Department of Neurosurgery, Vascular Biology Program, Harvard Medical School

    Maria A. Stanley, MD, FAAP, Annual Symposium Committee Co-Chair; Clinical Associate Professor of Pediatrics, University of Wisconsin School of Medicine and Public Health; Medical Director, Waisman Center; Director, Down Syndrome Clinic

    David Tolleson, Executive Director, National Down Syndrome Congress

    Kishore Vellody, MD, President, National Down Syndrome Congress; Medical Director, Down Syndrome Center of Western Pennsylvania; Professor of Pediatrics, University of Pittsburgh School of Medicine

    Accreditation Statement

    In support of improving patient care, this activity has been planned and implemented by the University of Wisconsin–Madison ICEP and the Down Syndrome Medical Interest Group-USA.  The University of Wisconsin–Madison ICEP is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC) to provide continuing education for the healthcare team.

    Credit Designation Statements


    American Medical Association (AMA)

    The University of Wisconsin–Madison ICEP designates this live activity for a maximum of 7.5 AMA PRA Category 1 Credits™.  Physicians should claim only the credit commensurate with the extent of their participation in the activity.

    Continuing Education Units (CEUs)

    The University of Wisconsin–Madison ICEP, as a member of the University Professional & Continuing Education Association (UPCEA), authorizes this program for .75 CEUs or 7.5 hours.

    Available Credit

    • 7.50 AMA PRA Category 1 Credit
    • 7.50 University of Wisconsin–Madison Continuing Education Hours

    Course Information

    Course opens: 
    Course expires: 


    Please login or register to take this course.